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Development of an Inflammatory Bowel Disease registry

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Abstract

Inflammatory Bowel Disease is characterized by two major entities, Crohn's Disease and Ulcerative Colitis. These bowel diseases have associated problems involving the eyes, joints, skin, kidneys, immunological system, hepatobiliary system, and psychiatric disturbances. A regional IBD registry encompassing 18 hospitals and IBD specialists in east/northeast Pennsylvania was established to promote awareness of the clinical and epidemiological aspects of the disease. Results of this data collection effort will be shared with patients and physicians through the use of newsletters and symposia. A Basic History (HX) form, an Operative Data (OR) form, and an Annual Follow-up (FU) form was used to collect relevant data. Participation is voluntary and all information is confidential.

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Authors and Affiliations

  1. From the Research Department, The Allentown Hospital—Lehigh Valley Hospital Center, 18105, Allentown, Pennsylvania

    James F. Reed III Ph.D.

  2. Division of Colorectal Surgery, The Allentown Hospital—Lehigh Valley Hospital Center, 18105, Allentown, Pennsylvania

    Lester Rosen M.D.

  3. Department of Medicine, The Allentown Hospital—Lehigh Valley Hospital Center, 18105, Allentown, Pennsylvania

    Carl F. D'Angelo M.D.

Authors
  1. James F. Reed III Ph.D.
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  2. Lester Rosen M.D.
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  3. Carl F. D'Angelo M.D.
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Reed, J.F., Rosen, L. & D'Angelo, C.F. Development of an Inflammatory Bowel Disease registry. J Med Syst 12, 383–387 (1988). https://doi.org/10.1007/BF00992686

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  • DOI: https://doi.org/10.1007/BF00992686

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