Abstract
The results of a questionnaire answered by 205 medical patients are reported (100 patients with cancer and 105 with other medical conditions). The questionnaire examined beliefs and preferences regarding various aspects of cancer, including expectations of medical management and treatment. The issues examined relate to beliefs and preferences about information giving, trust of doctors' control of decision making, expectations of help, expectations of treatment, the treatment of cancer pain including morphine use, and issues of terminal care. Some patients appear to hold the inconsistent beliefs that doctors should tell them all they want to know, but that doctors do not know a lot of what they would like to be told. They were also ambivalent about who should make decisions, patient or doctor, suggesting a preference for collaborative consensus decision making. It may be important to inform patients more clearly about what doctors can and cannot reasonably be expected to know and do. Some incorrect beliefs about management were related to fear about having cancer. The results suggest the need for better communication between patients and their professional carers and the need for accessible health information about cancer management to be available to the general public.
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References
Borland R, Donaghue N, Hill D (1994) Illnesses that Australians most feared in 1986 and 1993. Aust J Public Health 18:366–369
Brock DW, Wartman SA (1990) When competent patients make irrational choices. N Engl J Med 322:1595–1599
Cassileth BR, Zupkis RV, Sutton-Smith K, March BA (1980) Information and participation preferences among cancer patients. Ann Intern Med 92:832–836
Chaitchik S, Kreitler S, Shaked S, Schwartz I, Rosen R (1992) Doctor-patient communication in a cancer ward. J Cancer Educ 7:41–54
Cleeland CS (1987) Barriers to the management of cancer pain. Oncology (Huntington) 1[Suppl 2]:19–26
Degner LF, Russell CA (1988) Preferences for treatment control among adults with cancer. Res Nurs Health 11:367–374
Golbern, JS, Johnston GD (1970) Problems of distortion in doctor-patient communication. Psychiatry Med 1:127
Goldberg R, Guadagnoli E, Silliman RA, Glicksman A (1990) Cancer patients concerns: cognisance between patients and primary care physicians. J Cancer Educ 5:193–199
Holland J (1989) Now we tell — but how well? Editorial. J Clin Oncol 7:557–559
Kindelan K, Kant G (1987) Concordance between patient's information preferences and general practitioners' perceptions. Psychol Health 1:399–409
Mackillop WJ, Stewart WE, Ginsburg AD, Stewart SS (1988) Cancer patients' perceptions of their disease and its treatment. Br J Cancer 58:355–358
Maguire P, Faulkner A (1988) Communicating with cancer patients: handling bad news and difficult questions. 1. Br Med J 297:907–909
Maguire P, Faulkner A (1988) Communicating with cancer patients: handling bad news and difficult questions. 2. Br Med J 297:972–974
Nelson-Jones R, Cosolo W (1994) How to access thinking skills in cancer patients. Palliat Med 8:115–121
Owen C, Tennant C, Levi J, Jones M (1992) Suicide and euthanasia: patient attitudes in the context of cancer. Psycho-Oncology 1:79–88
Sider RC, Clements CD (1985) The new medical ethics: a second opinion. Arch Intern Med 12:2169
Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM (1988) Who should measure the quality of life, the doctor or the patient? Br J Cancer 57:109–112
Strull WM, Bernard LO, Charles G (1984) Do patients want to participate in medical decision making? JAMA 252:2990–2994
Usherwood TP (1990) Responses to illness: implications for the clinician. J R Soc Med 3:205–207