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Intervention and Support for Siblings of Youth with Developmental Disabilities: A Systematic Review

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Abstract

Both the population of siblings of youth with developmental disabilities (DDs) and the popularity of clinical services designed for these youth are on the rise. However, the research base for such services has yet to be evaluated. A systematic review of studies on intervention and support for siblings of youth with DDs was conducted in order to evaluate the current state of the literature and provide recommendations for research and practice. Sixteen articles were selected and reviewed in terms of their experimental design, participant characteristics, measurement, intervention or support group protocol, outcomes, and dissemination of findings. Results indicate substantial variability in both methodology and outcomes across sibling-focused intervention and support group studies, which put the overall effects and utility of these services into question. Recommendations for future research are outlined, with a focus on advancing a more systematic and careful approach to asking and effectively answering questions about siblings, their families, and meaningful services for both.

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Notes

  1. Henceforth, in this manuscript, the word “siblings” will be used to represent the child and adolescent siblings of youth with DDs.

  2. While several studies have found that parental psychological functioning (e.g., depression, anxiety, stress) may differ across DD diagnoses (e.g., Dumas et al. 1991; Estes et al. 2013; Sanders and Morgan 1997), little research has provided evidence that sibling functioning differs across diagnostic categories. Consistently, extant intervention and sibling support group literature also rarely differentiates siblings based on their brother or sister’s diagnosis. The current systematic review similarly examines extant sibling intervention and support group research in broad DD terms, which is consonant with the current state of this field. Further, given that the size of this area of research remains relatively small, focusing on the DD population, as opposed to focusing on a specific diagnostic group, allows for a more comprehensive sampling of relevant articles. Such a method represents the most comprehensive treatment of this field of study and, importantly, does not reflect a proposed homogeneity across diagnostic groups or the associated sibling functioning thereof.

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Acknowledgments

The first author wishes to thank Drs. Daniel O’Leary, John Robinson, Lauren Moskowitz, and Caitlin Walsh for their invaluable feedback on an earlier version of this systematic review. Susie McHugh, Laura Mankuski, Grace (EunJin) Lee, James Rankin, and Patricia Medina are also thanked for their immense help as research assistants.

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The authors declare that they have no conflict of interest.

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  1. Psychology Department, Stony Brook University, Stony Brook, NY, 11794-2500, USA

    Megan E. Tudor & Matthew D. Lerner

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  1. Megan E. Tudor
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  2. Matthew D. Lerner
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Correspondence to Megan E. Tudor.

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Tudor, M.E., Lerner, M.D. Intervention and Support for Siblings of Youth with Developmental Disabilities: A Systematic Review. Clin Child Fam Psychol Rev 18, 1–23 (2015). https://doi.org/10.1007/s10567-014-0175-1

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