Abstract
Human sexuality has been medicalized and largely reduced to its physical components. This has led to a focus on the performative part of sexuality, and to a lack of interest in its social component. Men with spinal cord injury often report an unsatisfying sexual life, with limited chances to express their sexuality. This study shows that sociocultural barriers may be as disabling as physical impairment. The participants of this qualitative study felt that several barriers compromised their right to a satisfying sexual life, including certain social beliefs and attitudes (e.g. social disapproval and exclusive notion of sexuality), lack of employment, inappropriate personal assistance and inaccessibility among others. Impairment per se was not viewed as a barrier, since the new situation assumed status of normality. It is suggested that changes in education as well as the removal of physical barriers may positively influence societal attitudes and make sexuality more “accessible” to disabled people.
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References
Hahn, H.: The social component of sexuality and disability: Some problems and proposals. Sex Disability 4, 220–233 (1981)
Milligan, M., Neufeldt, A.: The myth of asexuality: a survey of social and empirical evidence. Sex Disability 19, 91–109 (2001)
Tepper, M.: Letting go of restrictive notions of manhood: Male sexuality, disability and chronic illness. Sex Disability 17, 37–52 (1999)
Tepper, M.: Sexuality and disability: The missing discourse of pleasure. Sex Disability 18, 283–290 (2000)
Stroman, D.: The Disability Rights Movement. Lanham, Maryland, University Press of America (2003)
Shakespeare, T., Watson, N. (2001) Making the difference: disability, politics and recognition. In: Albrecht, G., Seelman, K., Bury, M. (eds.) The Handbook of Disability Studies, pp. 546–564. Sage Publications, Inc, Thous and Oaks California
Braddock, D., Parish, S.: An institutional history of disability. In: Albert, G., Seelman, K., Bury, M. (eds.) The Handbook of Disability Studies, pp. 11–67. Sage Publications, Inc, Thous and Oaks California (2001)
Stalker, K., Jones, C.: Normalization and critical disability theory. In: Jones, D., Blair, S., Hartery, T., Jones, R. (eds.) Sociology and Occupational Therapy, pp. 171–183. Churchill Livingstone, Edinburgh (1998)
Drench, M.: Impact of altered sexuality and sexual function in spinal cord injury: a review. Sex Disability 10, 3–14 (1992)
Murphy, R.: The Body Silent. W. W. Norton, New York (1990)
Shakespeare, T.: The sexual politics of disabled masculinity. Sex Disability 17, 53–64 (1999)
Weinberg, J.S.: Human sexuality and spinal cord injury. Nursing Clinics North Am. 17, 407–419 (1982)
Hammell, K.: Spinal Cord Injury Rehabilitation. Chapman and Hall, London (1995)
Mah, K., Binik, Y.: Are orgasms in the mind or the body? Psychosocial versus physiological correlates of orgasmic pleasure and satisfaction. J. Sex Marital Ther. 31, 187–200 (2005)
Cole, J.: Still Lives. The MIT Press, Cambridge Massachusetts (2004)
Guldin, A.: Self claiming sexuality: mobility impaired people and Americanculture. Sex Disability 18, 233–238 (2000)
Sakellariou, D.: Sexuality of men with spinal cord injury: a phenomenological study. Unpublished MSc Dissertation. Sapporo, Sapporo Medical University (2005)
Sakellariou, D., Sawada, Y.: Sexuality after spinal cord injury: the Greek male’s perspective. Am. J. Occup. Ther. 60, 311–319 (2006)
Sakellariou, D., Simó Algado, S.: Sexuality and disability: a case ofoccupational injustice. Br. J. Occup. Ther. 69, 69–76 (2006)
Moustakas, C.: Phenomenological Research Methods. Sage Publications, London (1994)
van Manen, M.: Researching Lived Experience. The Althouse Press, London Ontario (1990)
Taleporos, G., McCabe, M.: Relationships, sexuality and adjustment among people with physical disability. Sex Relation Ther. 18, 25–43 (2003)
Laumann, E., Gagnon, J.: A sociological perspective on sexual action. In: Parker, R., Gagnon, J. (eds.) Conceiving Sexuality, pp. 183–214. Routledge, New York (1995)
Shakespeare, T., Gillespie–Sells, K., Davies, D.: The Sexual Politics of Disability. Cassell, London (1996)
Good, B.: Medicine, Rationality, and Experience. Cambridge University Press, Cambridge (1994)
McCabe, M., Taleporos, G.: Sexual esteem, sexual satisfaction and sexual behavior among people with physical disability. Arch. Sex Behav. 32, 359–369 (2003)
Sakellariou, D.: The disabler, the disablee and their context: a tripartite view of disability. Br. J. Occup. Ther. 69, 49 (2006)
Gagnon, J., Parker, R.: Introduction. In: Parker, R., Gagnon, J. (eds.) Conceiving Sexuality, pp. 3–18. New York, Routledge (1995)
Weeks, J.: History, desires, and identities. In: Parker, R., Gagnon, J. (eds.) Conceiving Sexuality, pp. 33–50. Routledge, New York (1995)
Connell, R.W.: Masculinities. University of California Press, Berkeley and Los Angeles California (1995)
Linschoten, J.: Aspects of the sexual incarnation. In: Kockelmans, J. (ed.) Phenomenological Psychology: The Dutch School, pp. 149–194. Dordrecht, Martinus Nijhoff Publishing (1969/1987)
Shakespeare, T.: “I haven’t seen that in the Kama Sutra”: The sexual stories of disabled people. In: Weeks, J., Holl, J., Waites, M. (eds.) Sexualities and Society: A Reader. Polity Press, Cambridge (2003)
Eagle, M.: Challenging society’s perceptions of disability. Br. J. Occup. Ther. 6, 135 (2003)
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Sakellariou, D. If not the Disability, then what? Barriers to Reclaiming Sexuality Following Spinal Cord Injury. Sex Disabil 24, 101–111 (2006). https://doi.org/10.1007/s11195-006-9008-6
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DOI: https://doi.org/10.1007/s11195-006-9008-6