Abstract
The migration of robots from the laboratory into sensitive home settings as commercially available therapeutic agents represents a significant transition for information privacy and ethical imperatives. We present new privacy paradigms and apply the fair information practices (FIPs) to investigate concerns unique to the placement of therapeutic robots in private home contexts. We then explore the importance and utility of research ethics as operationalized by existing human subjects research frameworks to guide the consideration of therapeutic robotic users—a step vital to the continued research and development of these platforms. Together, privacy and research ethics frameworks provide two complementary approaches to protect users and ensure responsible yet robust information sharing for technology development. We make recommendations for the implementation of these principles—paying particular attention to specific principles that apply to vulnerable individuals (i.e., children, disabled, or elderly persons)—to promote the adoption and continued improvement of long-term, responsible, and research-enabled robotics in private settings.
Notes
An exception would be if a private company receives federal grant money to fund a study, but even academic collaborations often do not trigger Institutional Review Board (IRB) oversight. Some companies have private ethical review practices or private IRBs, but these actions are not regulated or standardized.
The Belmont Report refers to vulnerable populations as those that “either have limited capacities to consent, have subordinate relationships to the investigator or his institutions...or—by virtue of other aspects of their life—are especially vulnerable.” The Report goes on to specify that those with “limited capacities to consent” include children, fetuses, prisoners, mentally institutionalized, those under the influences of addiction, or those otherwise vulnerable as a consequence of their life situations (for example, those legally enfranchised to grant consent but are in reality incapable of sufficient comprehension, persons with prolonged illness) [36].
References
16 CFR Part 312—Children’s Online Privacy Protection Rule
Alaiad A, Zhou L (2014) The determinants of home healthcare robots adoption: an empirical investigation. Int J Med Inform 83(11):825–840
Anciaux N, Bonnet P, Bouganim L, Nguyen B, Pucheral P, Sandu-Popa I (2013) Trusted cells: a sea change for personnal data services. In: CIDR 2013—6th biennal conference on innovative database research
Bennett CJ, Raab CD (2006) The governance of privacy: policy instruments in global perspective. 2nd and updated edition
Broekens J, Heerink M, Rosendal H (2009) Assistive social robots in elderly care: a review. Gerontechnology 8(2):94–103
Butler DJ, Huang J, Roesner F, Cakmak M (2015) The privacy-utility tradeoff for remotely teleoperated robots. In: Proceedings of the tenth annual ACM/IEEE international conference on human–robot interaction, ACM, New York, pp 27–34
Caine K, Šabanović S, Carter M (2012) The effect of monitoring by cameras and robots on the privacy enhancing behaviors of older adults. In: 2012 7th ACM/IEEE international conference on human–robot interaction (HRI), pp 343–350
Calo R (2010) Robots and privacy. In: Lin P, Bekey G, Abney K (eds) Robot ethics: the ethical and social implications of robotics. MIT Press, Cambridge
Cao HL, Pop C, Simut R, Furnemónt R, De Beir A, Van de Perre G, Esteban PG, Lefeber D, Vanderborght B (2015) Probolino: a portable low-cost social device for home-based autism therapy. In: Social robotics. Springer, New York, pp 93–102
Centers for Disease Control and Prevention (2015) Research data center: remote access. http://www.cdc.gov/rdc/b2accessmod/acs230.htm. Accessed 1 Mar 2015
U.S. Congress: Federal Trade Commission Act 15 U.S.C (2006) 45. https://www.ftc.gov/sites/default/files/documents/statutes/federal-trade-commission-act/ftc_act_incorporatingus_safe_web_act.pdf
de Montjoye YA, Wang SS, Pentland A, Anh DTT, Datta A et al (2012) On the trusted use of large-scale personal data. IEEE Data Eng Bull 35(4):5–8
Decker M (2008) Caregiving robots and ethical reflection: the perspective of interdisciplinary technology assessment. AI Soc 22(3):315–330
Denning T, Matuszek C, Koscher K, Smith JR, Kohno T (2009) A spotlight on security and privacy risks with future household robots: attacks and lessons. In: Proceedings of the 11th international conference on ubiquitous computing. ACM, New York, pp 105–114
Department of Health and Human Services (2016) HIPAA Administrative Simplification: Enforcement (45 CFR Parts 160 and 164). http://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/administrative/privacyrule/finalenforcementrule06.pdf. Accessed 1 Mar 2016
U.S. Department of Health and Human Services Food and Drug Administration (2016) Medical device data systems, medical image storage devices, and medical image communications devices. http://www.fda.gov/downloads/MedicalDevices/DeviceRegulationandGuidance/GuidanceDocuments/UCM401996.pdf. Accessed 1 Mar 2016
Dittrich D, Kenneally E et al (2011) The Menlo Report: ethical principles guiding information and communication technology research. US Department of Homeland Security
Edwards WK, Grinter RE (2001) At home with ubiquitous computing: seven challenges. In: Ubicomp 2001: ubiquitous computing. Springer, New York, pp 256–272
Gellman R (2014) Fair information practices: a basic history. Available at SSRN 2415020
Grimmelmann J (2015) The law and ethics of experiments on social media users
Halzack S (2015) Privacy advocates try to keep ’creepy’ ’eavesdropping’ hello barbie from hitting shelves. https://www.washingtonpost.com/news/the-switch/wp/2015/03/11/privacy-advocates-try-to-keep-creepy-eavesdropping-hello-barbie-from-hitting-shelves/
Hong JI, Landay JA (2004) An architecture for privacy-sensitive ubiquitous computing. In: Proceedings of the 2nd international conference on mobile systems, applications, and services. ACM, New York, pp 177–189
Horvitz E, Mulligan D (2015) Data, privacy, and the greater good. Science 349(6245):253–255
Jibo (2015) Meet Jibo, the worlds first social robot for the home. https://www.jibo.com/ (2014). Accessed 1 June 2015
Johnson DG, Nissenbaum H (1995) Computers, ethics and social values
JustoCat (2015) Justocat is proven to be a valuable tool in improving interaction with relatives and care givers. http://www.justocat.com/product/ (2015). Accessed 11 Oct 2015
Kaminski ME (2015) Robots in the home: What will we have agreed to? Idaho Law Rev 51(3):661
Khosla R, Nguyen K, Chu MT (2015) Socially assistive robot enabled home-based care for supporting people with autism
Kramer AD, Guillory JE, Hancock JT (2014) Experimental evidence of massive-scale emotional contagion through social networks. Proc Nat Acad Sci 111(24):8788–8790
Lerner JI, Mulligan DK (2008) Taking the long view on the fourth amendment: stored records and the sanctity of the home. Stanf Technol Law Rev 3:60
Lin P, Abney K, Bekey GA (2011) Robot ethics: the ethical and social implications of robotics. MIT press, Cambridge
Lisovich MA, Mulligan DK, Wicker SB (2010) Inferring personal information from demand-response systems. IEEE Secur Priv 8(1):11–20
Liu C, Conn K, Sarkar N, Stone W (2007) Affect recognition in robot assisted rehabilitation of children with autism spectrum disorder. In: IEEE international conference on robotics and automation, pp 1755–1760
Matyszczyk C (2015) Samsung changes smart TV privacy policy in wake of spying fears. http://www.cnet.com/news/samsung-changes-smarttv-privacy-policy-in-wake-of-spying-fears/
Moor JH (2006) Using genetic information while protecting the privacy of the soul. In: Tawani HT (ed) Ethics, computing, and genomics. Jones and Bartlett, Sudbury, pp 109–119
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Bethesda, MD (1978) The Belmont report: ethical principles and guidelines for the protection of human subjects of research: Appendix Report Vol. 1. ERIC Clearinghouse
Nissenbaum H (2004) Privacy as contextual integrity. Wash Law Rev 79:119
Nissenbaum H (2009) Privacy in context: technology, policy, and the integrity of social life. Stanford University Press, Palo Alto
Riek LD, Howard D (2014) A code of ethics for the human–robot interaction profession. In: Proceedings of we robot
Robinson H, MacDonald B, Broadbent E (2014) The role of healthcare robots for older people at home: a review. Int J Soc Robot 6(4):575–591
RoboKind: Advanced Social Robots (2016) Robots4autism: Meet milo. http://www.robokindrobots.com/robots4autism-home/. Accessed 1 Mar 2016
RobotCenter (2015) Paro therapeutic robot seal. http://www.robotcenter.co.uk/products/paro-therapeutic-robot-seal (2015). Accessed 11 Oct 2015
RobotsLab (2015) Nao evolution - v5. http://shop.robotslab.com/products/nao-h25 (2015). Accessed 11 Oct 2015
Scott SL (2010) A modern bayesian look at the multi-armed bandit. Appl Stoch Models Bus Ind 26(6):639–658
Sharkey A, Sharkey N (2012) Granny and the robots: ethical issues in robot care for the elderly. Ethics Inf Technol 14(1):27–40
Stopczynski A, Pietri R, Pentland A, Lazer D, Lehmann S (2014) Privacy in sensor-driven human data collection: a guide for practitioners. arXiv preprint arXiv:1403.5299
Sung JY, Guo L, Grinter RE, Christensen HI (2007) My roomba is rambo: intimate home appliances. In: Proceedings of the 9th international conference on Ubiquitous computing. Springer, Berlin, pp 145–162
Tavani HT (2008) Informational privacy: concepts, theories, and controversies. In: Himma KE, Tavani HT (eds) The handbook of information and computer ethics. Wiley, Hoboken, pp 131–164
The National Commission for Protection of Human Subjects of Biomedical and Behavioral Research (1979) The Belmont Report—Office of the Secretary, Ethical Principles and Guidelines for the Protection of Human Subjects Research
The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1977) Report and recommendations research involving children. https://videocast.nih.gov/pdf/ohrp_research_involving_children.pdf
The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1978) Research involving those institutionalized as mentally infirm. https://videocast.nih.gov/pdf/ohrp_research_mentally_infirm.pdf
The Nuremberg Code (1949) Trials of war criminals before the Nuremberg military tribunals under control council law 10:181–182
Thompson RM (2014) The fourth amendment third-party doctrine. Congressional Research Service
US Department of Health and Human Services and others (2009) Code of federal regulations. Title 45 Public welfare. Department of Health and Human Services. Part 46: Protection of human subjects
Westin AF (1968) Privacy and freedom. Wash Lee Law Rev 25(1):166
Acknowledgments
This research was supported by the Hewlett Foundation through the UC Berkeley Center for Long- Term Cybersecurity (CLTC). The authors would also like to acknowledge the reviewers for their valuable feedback.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Sedenberg, E., Chuang, J. & Mulligan, D. Designing Commercial Therapeutic Robots for Privacy Preserving Systems and Ethical Research Practices Within the Home. Int J of Soc Robotics 8, 575–587 (2016). https://doi.org/10.1007/s12369-016-0362-y
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s12369-016-0362-y