Abstract
Purpose
To investigate the scope and nature of discrimination and positive treatment experienced by adults with mental health problems from their friends and family in a population-based survey.
Methods
An Australian telephone-survey of 5220 adults included 1381 individuals who reported a mental health problem or scored high on a screening questionnaire. Respondents were interviewed about their experience of discrimination and positive treatment from their friends, spouse and other family members. Descriptions of experiences were content-analysed to identify key characteristics.
Results
Mental health diagnoses were primarily depression or anxiety disorders, and just over half had received treatment in the last 12 months. Positive treatment from family and friends was far more common than discrimination, reported by 74.1% of respondents. This was primarily characterised by providing emotional support and maintaining contact, as well as checking on their mental health and being a good listener. Nevertheless, discriminatory behaviours from friends and family were reported by 25.8% of respondents, with reducing or cutting contact being by far the most common. Friends and family also commonly dismissed that mental illness was real or caused suffering and showed a lack of understanding about mental health problems or treatments and how they can impact behaviour and functioning.
Conclusions
This nationally representative study of real life experiences highlights the potential for harm or benefit from a person’s social support network. Despite positive experiences being common, there is an ongoing need to reduce mental illness stigma and improve understanding of how to support a loved one with a mental health problem.
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References
Clement S, Schauman O, Graham T, Maggioni F, Evans-Lacko S, Bezborodovs N, Morgan C, Rüsch N, Brown JSL, Thornicroft G (2015) What is the impact of mental health-related stigma on help-seeking? A systematic review of quantitative and qualitative studies. Psychol Med 45(01):11–27. doi:10.1017/S0033291714000129
Lasalvia A, Zoppei S, Van Bortel T, Bonetto C, Cristofalo D, Wahlbeck K, Bacle SV, Van Audenhove C, van Weeghel J, Reneses B (2013) Global pattern of experienced and anticipated discrimination reported by people with major depressive disorder: a cross-sectional survey. Lancet 381(9860):55–62
Farrelly S, Jeffery D, Rüsch N, Williams P, Thornicroft G, Clement S (2015) The link between mental health-related discrimination and suicidality: service user perspectives. Psychol Med 45(10):2013–2022. doi:10.1017/S0033291714003158
Livingston JD, Boyd JE (2010) Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med 71(12):2150–2161. doi:10.1016/j.socscimed.2010.09.030
Corrigan PW, Watson AC (2002) Understanding the impact of stigma on people with mental illness. World Psychiatry 1(1):16–20
Jorm AF, Oh E (2009) Desire for social distance from people with mental disorders. Aust N Z J Psychiatry 43(3):183–200. doi:10.1080/00048670802653349
Jorm AF, Reavley NJ, Ross AM (2012) Belief in the dangerousness of people with mental disorders: a review. Aust N Z J Psychiatry 46(11):1029–1045. doi:10.1177/0004867412442406
Thornicroft G, Brohan E, Rose D, Sartorius N, Leese M (2009) Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 373(9661):408–415
Thornicroft C, Wyllie A, Thornicroft G, Mehta N (2014) Impact of the “Like Minds, Like Mine” anti-stigma and discrimination campaign in New Zealand on anticipated and experienced discrimination. Aust N Z J Psychiatry 48(4):360–370. doi:10.1177/0004867413512687
Brohan E, Slade M, Clement S, Thornicroft G (2013) Development and psychometric validation of the discrimination and stigma scale (DISC). Psychiatry Res. doi:10.1016/j.psychres.2013.03.007
Corker E, Hamilton S, Henderson C, Weeks C, Pinfold V, Rose D, Williams P, Flach C, Gill V, Lewis-Holmes E, Thornicroft G (2013) Experiences of discrimination among people using mental health services in England 2008–2011. Br J Psychiatry 202(s55):s58–s63. doi:10.1192/bjp.bp.112.112912
Hansson L, Stjernswärd S, Svensson B (2014) Perceived and anticipated discrimination in people with mental illness—an interview study. Nord J Psychiatry 68(2):100–106. doi:10.3109/08039488.2013.775339
Griffiths KM, Crisp DA, Barney L, Reid R (2011) Seeking help for depression from family and friends: a qualitative analysis of perceived advantages and disadvantages. BMC Psychiatry 11:196. doi:10.1186/1471-244X-11-196
Mestdagh A, Hansen B (2014) Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies. Soc Psychiatry Psychiatr Epidemiol 49(1):79–87. doi:10.1007/s00127-013-0729-4
Hamilton S, Lewis-Holmes E, Pinfold V, Henderson C, Rose D, Thornicroft G (2014) Discrimination against people with a mental health diagnosis: qualitative analysis of reported experiences. J Mental Health 23(2):88–93. doi:10.3109/09638237.2014.880408
Hamilton S, Pinfold V, Cotney J, Couperthwaite L, Matthews J, Barret K, Warren S, Corker E, Rose D, Thornicroft G, Henderson C (2016) Qualitative analysis of mental health service users’ reported experiences of discrimination. Acta Psychiatr Scand 134:14–22. doi:10.1111/acps.12611
Lakeman R, McGowan P, MacGabhann L, Parkinson M, Redmond M, Sibitz I, Stevenson C, Walsh J (2012) A qualitative study exploring experiences of discrimination associated with mental-health problems in Ireland. Epidemiol Psychiatr Sci 21(3):271–279. doi:10.1017/S2045796012000017
Rose D, Willis R, Brohan E, Sartorius N, Villares C, Wahlbeck K, Thornicroft G (2011) Reported stigma and discrimination by people with a diagnosis of schizophrenia. Epidemiol Psychiatr Sci 20(02):193–204
Schulze B, Angermeyer MC (2003) Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Soc Sci Med 56(2):299–312. doi:10.1016/S0277-9536(02)00028-X
Dour HJ, Wiley JF, Roy-Byrne P, Stein MB, Sullivan G, Sherbourne CD, Bystritsky A, Rose RD, Craske MG (2014) Perceived social support mediates anxiety and depressive symptom changes following primary care intervention. Depression Anxiety 31(5):436–442. doi:10.1002/da.22216
Nasser EH, Overholser JC (2005) Recovery from major depression: the role of support from family, friends, and spiritual beliefs. Acta Psychiatr Scand 111(2):125–132. doi:10.1111/j.1600-0447.2004.00423.x
Doherty EF, MacGeorge EL (2012) Perceptions of supportive behavior by young adults with bipolar disorder. Qual Health Res 23(3):361–374. doi:10.1177/1049732312468508
Reavley NJ, Jorm AF (2015) Experiences of discrimination and positive treatment in people with mental health problems: findings from an Australian national survey. Aust N Z J Psychiatry 49(10):906–913. doi:10.1177/0004867415602068
Reavley NJ, Jorm AF, Morgan AJ (2016) Discrimination and positive treatment toward people with mental health problems in workplace and education settings: findings from an Australian national survey. Stigma Health. Advance online publication. doi:10.1037/sah0000059
Morgan AJ, Reavley NJ, Jorm AF, Beatson R (2016) Experiences of discrimination and positive treatment from health professionals: a national survey of adults with mental health problems. Aust N Z J Psychiatry 50(8):754–762. doi:10.1177/0004867416655605
Kessler RC, Green JG, Gruber MJ, Sampson NA, Bromet E, Cuitan M, Furukawa TA, Gureje O, Hinkov H, Hu CY, Lara C, Lee S, Mneimneh Z, Myer L, Oakley-Browne M, Posada-Villa J, Sagar R, Viana MC, Zaslavsky AM (2010) Screening for serious mental illness in the general population with the K6 screening scale: results from the WHO World Mental Health (WMH) survey initiative. Int J Methods Psychiatr Res 19(Suppl 1):4–22. doi:10.1002/mpr.310
Crowe M, Inder M, Porter R (2015) Conducting qualitative research in mental health: thematic and content analyses. Aust N Z J Psychiatry 49(7):616–623. doi:10.1177/0004867415582053
Dal Grande E, Chittleborough CR, Campostrini S, Tucker G, Taylor AW (2015) Health estimates using survey raked-weighting techniques in an Australian population health surveillance system. Am J Epidemiol 182(6):544–556. doi:10.1093/aje/kwv080
Corrigan PW (2016) Lessons learned from unintended consequences about erasing the stigma of mental illness. World Psychiatry 15(1):67–73. doi:10.1002/wps.20295
Reavley NJ, Jorm AF (2012) Stigmatising attitudes towards people with mental disorders: changes in Australia over 8 years. Psychiatry Res 197(3):302–306. doi:10.1016/j.psychres.2012.01.011
Schomerus G, Schwahn C, Holzinger A, Corrigan PW, Grabe HJ, Carta MG, Angermeyer MC (2012) Evolution of public attitudes about mental illness: a systematic review and meta-analysis. Acta Psychiatr Scand 125(6):440–452. doi:10.1111/j.1600-0447.2012.01826.x
Reavley NJ, Jorm AF (2012) Public recognition of mental disorders and beliefs about treatment: changes in Australia over 16 years. Br J Psychiatry 200(5):419–425. doi:10.1192/bjp.bp.111.104208
Hadlaczky G, Hökby S, Mkrtchian A, Carli V, Wasserman D (2014) Mental Health First Aid is an effective public health intervention for improving knowledge, attitudes, and behaviour: a meta-analysis. Int Rev Psychiatry 26(4):467–475. doi:10.3109/09540261.2014.924910
Askey R, Holmshaw J, Gamble C, Gray R (2009) What do carers of people with psychosis need from mental health services? Exploring the views of carers, service users and professionals. J Family Ther 31(3):310–331. doi:10.1111/j.1467-6427.2009.00470.x
Berk L, Jorm AF, Kelly CM, Dodd S, Berk M (2011) Development of guidelines for caregivers of people with bipolar disorder: a Delphi expert consensus study. Bipolar Disord 13(5–6):556–570. doi:10.1111/j.1399-5618.2011.00942.x
Corrigan PW, Druss BG, Perlick DA (2014) The impact of mental illness stigma on seeking and participating in mental health care. Psychol Sci Public Interest 15(2):37–70. doi:10.1177/1529100614531398
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The study was supported by the National Health and Medical Research Council.
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The authors assert that all procedures contributing to this work comply with the ethical standards of the relevant national and institutional committees on human experimentation and with the Helsinki Declaration of 1975, as revised in 2008.
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Morgan, A.J., Reavley, N.J., Jorm, A.F. et al. Discrimination and support from friends and family members experienced by people with mental health problems: findings from an Australian national survey. Soc Psychiatry Psychiatr Epidemiol 52, 1395–1403 (2017). https://doi.org/10.1007/s00127-017-1391-z
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DOI: https://doi.org/10.1007/s00127-017-1391-z