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The Victorian Lung Cancer Registry Pilot: Improving the Quality of Lung Cancer Care Through the Use of a Disease Quality Registry

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Abstract

Background

Lung cancer remains a major disease burden in Victoria (Australia) and requires a complex and multidisciplinary approach to ensure optimal care and outcomes. To date, no uniform mechanism is available to capture standardized population-based outcomes and thereby provide benchmarking. The establishment of such a data platform is, therefore, a primary requisite to enable description of process and outcome in lung cancer care and to drive improvement in the quality of care provided to individuals with lung cancer.

Materials and Methods

A disease quality registry pilot has been established to capture prospective data on all adult patients with clinical or tissue diagnoses of small cell and non-small cell lung cancer. Steering and management committees provide clinical governance and supervise quality indicator selection. Quality indicators were selected following extensive literature review and evaluation of established clinical practice guidelines. A minimum dataset has been established and training and data capture by data collectors is facilitated using a web-based portal. Case ascertainment is established by regular institutional reporting of ICD-10 discharge coding. Recruitment is optimized by provision of opt-out consent.

Results

The collection of a standardized minimum data set optimizes capacity for harmonized population-based data capture. Data collection has commenced in a variety of settings reflecting metropolitan and rural, and public, and private health care institutions. The data set provides scope for the construction of a risk-adjusted model for outcomes. A data access policy and a mechanism for escalation policy for outcome outliers has been established.

Conclusions

The Victorian Lung Cancer Registry provides a unique capacity to provide and confirm quality assessment in lung cancer and to drive improvement in quality of care across multidisciplinary stakeholders.

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Acknowledgments

This paper written on behalf of the Victorian Lung Cancer Steering and Management committees. Funding for the Victorian Lung Cancer Registry has been provided through a Grant from the Victorian Cancer Agency 2010.

Conflict of interest

The authors have no conflict of interests to declare.

Ethics

The Victorian Lung Cancer Registry Pilot has been approved by the ethics committee of the Alfred Hospital Research and Ethics Unit (Project 1589/11).

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Correspondence to Rob G. Stirling.

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Stirling, R.G., Evans, S.M., McLaughlin, P. et al. The Victorian Lung Cancer Registry Pilot: Improving the Quality of Lung Cancer Care Through the Use of a Disease Quality Registry. Lung 192, 749–758 (2014). https://doi.org/10.1007/s00408-014-9603-8

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