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Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care

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Abstract

The aim of this study was to compare perceived barriers to and the most preferred age for successful transition to adult health care between young people with chronic disorders who had not yet transferred from pediatric to adult health care (pre-transfer) and those who had already transferred (post-transfer). In a cross-sectional study, we compared 283 pre-transfer with 89 post-transfer young people, using a 28-item questionnaire that focused on perceived barriers to transition and beliefs about the most preferred age to transfer. Feeling at ease with the pediatrician was the most important barrier to successful transition in both groups, but was rated significantly higher in the pre-transfer compared to the post-transfer group (OR = 2.03, 95 %CI 1.12–3.71). Anxiety and lack of information were the next most important barriers, rated equally highly by the two groups (OR = 0.67, 95 %CI 0.35–1.28 and OR = 0.71, 95 %CI 0.36–1.38, respectively). More than 80 % of the respondents in both groups reported that 16–19 years was the most preferred age to transfer; more than half of all the respondents reported 18–19 years and older as the most preferred age. Conclusion: Better transition planning through the provision of regular and more detailed information about adult health-care providers and the transition process could reduce anxiety and contribute to a more positive attitude to overcome perceived barriers to transition from young people’s perspective. Young people’s preferences about transferring to adult health care provide a challenge to those children’s hospitals that transfer to adult health care at a younger age.

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Abbreviations

AHC:

Adult health care

Post-transfer:

Sample of young people who had transferred from pediatric to adult health care

Pre-transfer:

Sample of young people who had not yet transferred from pediatric to adult health care

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Acknowledgments

This research was supported by funding from the Wyeth Foundation of Switzerland for the health of children and adolescents, and the Donation UBS AG by order of a client.

Conflict of interest

The authors declare that they have no conflict of interest.

Author information

Authors and Affiliations

  1. Head Adolescent Medicine Unit, University Children’s Hospital, Steinwiesstrasse 75, 8032, Zurich, Switzerland

    Christoph Rutishauser

  2. Royal Children’s Hospital Centre for Adolescent Health, Melbourne, Australia

    Susan M. Sawyer

  3. Department of Paediatrics, The University of Melbourne, Melbourne, Australia

    Susan M. Sawyer

  4. Murdoch Children’s Research Institute, Melbourne, Australia

    Susan M. Sawyer

  5. Multidisciplinary Team of Adolescent Health, Lausanne University Hospital, Lausanne, Switzerland

    Anne-Emmanuelle Ambresin

Authors
  1. Christoph Rutishauser
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  2. Susan M. Sawyer
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  3. Anne-Emmanuelle Ambresin
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Corresponding author

Correspondence to Christoph Rutishauser.

Additional information

Communicated by Beat Steinmann

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Rutishauser, C., Sawyer, S.M. & Ambresin, AE. Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care. Eur J Pediatr 173, 1067–1074 (2014). https://doi.org/10.1007/s00431-014-2291-9

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  • DOI: https://doi.org/10.1007/s00431-014-2291-9

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