Abstract
Purpose
In this program of research, we sought to expand our understanding of how cancer patients' communication needs and preferences change across the course of their illness trajectory. To address known limitations in the empirical knowledge base, we designed a study capitalizing on representative patient reports as they occurred within time and across experience obtaining care for this disease.
Methods
We used a longitudinal cohort design informed by interpretive description methodology to follow 125 patients over a multi-year period as they reflected on their ongoing experiences with cancer care communication.
Results
In relation to each phase of their cancer care trajectory, patients identified tension points and contextual challenges impinging on what they felt constituted helpful and unhelpful patient–provider communication.
Conclusions
Findings from this study create a dynamic portrait of how we can better inform communication approaches and interventions through interpretations of population knowledge and individual experience.
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Acknowledgments
This study was supported by grants from the Canadian Institutes of Health Research (#134487) and the Canadian Cancer Society Research Institute (#020376).
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The authors confirm that they have no financial relationship with the organization that sponsored the research. They also confirm that they have full control of all primary data and agree to allow the journal to review their data if requested.
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Thorne, S., Hislop, T.G., Kim-Sing, C. et al. Changing communication needs and preferences across the cancer care trajectory: insights from the patient perspective. Support Care Cancer 22, 1009–1015 (2014). https://doi.org/10.1007/s00520-013-2056-4
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DOI: https://doi.org/10.1007/s00520-013-2056-4