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Learning From the Cultural Challenge of Dementia

  • Symposium: Dementia
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Abstract

Learning from the profound challenge of dementia is an urgent priority. Success will require a critical deconstruction of current cultural and linguistic representations of this condition, and a kindling of novel and courageous approaches to re-conceptualise dementia's meaning and experience. This symposium collects provocative ideas arising from various discourses, theoretical perspectives, and methodolgical approaches to explore new ways to understand dementia.

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References

  • Angus, J., and S. Bowen. 2011. Quiet please, there’s a lady on stage:. Centering the person with dementia in life story narrative. Journal of Aging Studies 25(2): 110–117.

    Article  Google Scholar 

  • Bartlett, R., and D. O’Connor. 2007. From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies 21(2):107–118. https://doi.org/10.1016/j.jaging.2006.09.002.

    Article  Google Scholar 

  • Behuniak, S.M. 2011. The living dead? The construction of people with Alzheimer’s disease as zombies. Ageing and Society 31(1): 70–92.

    Article  Google Scholar 

  • ____. 2010. Toward a political model of dementia : Power as compassionate care. Journal of Aging Studies 24(4): 231–240.

    Article  Google Scholar 

  • Brennan, F. 2019. A response to “Fragile objects: A visual essay.” Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09911-7.

  • Burke, L. 2007. The poetry of dementia: Art, ethics and Alzheimer’s disease in Tony Harrison’s Black Daisies for the Bride. Journal of Literary Disability 1(1): 61–73.

    Article  Google Scholar 

  • Burke, L. 2019. Dementia and the paradigm of the camp: Thinking beyond Giorgio Agamben’s concept of “bare life”. Bioethical Inquiry 16(2). https://doi.org/10.1007/s11673-019-09913-5.

  • Chapman, M., J. Philip, S. Gardner, and P. Komesaroff. 2019a. Fragile objects: Avisual essay. Journal of Bioethical Inquiry 16(2). https://doi.org/10.1007/s11673-019-09911-7.

  • Chapman, M., J. Philip, and P. Komesaroff. 2019b. Towards an ecology of dementia: A manifesto. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09910-8.

  • Cummings, J.L., G. Tong, and C. Ballard. 2019. Treatment combinations for Alzheimer’s disease: Current and future pharmacotherapy options. Journal of Alzheimer’s Disease 67(3): 1–16.

    Google Scholar 

  • Edvardsson, D., B. Winblad, and P.O. Sandman. 2008. Person-centred care of people with severe Alzheimer’s disease: Current status and ways forward. The Lancet Neurology 7(4): 362–367.

    Article  Google Scholar 

  • Franzen, J. 2010. The corrections. London: HarperCollins Publishers.

    Google Scholar 

  • Genova, L. 2009. Still Alice. London: Pocket Books.

    Google Scholar 

  • George, D.R., and P.J. Whitehouse. 2014. The war (on terror) on Alzheimer’s. Dementia 13(1): 120–130.

    Article  Google Scholar 

  • George, D.R., S.H. Qualls, C.J. Camp, and P.J. Whitehouse. 2013. Renovating Alzheimer’s: “Constructive” reflections on the new clinical and research diagnostic guidelines.” Gerontologist 53(3): 378–387.

    Article  Google Scholar 

  • George, D.R., P.J. Whitehouse, and J. Ballenger. 2011. The evolving classification of dementia: Placing the DSM-V in a meaningful historical and cultural context and pondering the future of “Alzheimer’s”. Culture, Medicine, and Psychiatry 35 (3):417–435.

    Article  Google Scholar 

  • Grigorovich, A., P. Kontos, and A.P. Kontos. 2019. The “violent resident”: A critical exploration of the ethics of resident-to-resident aggression. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09898-1.

  • Kitwood, T.M. 1997. Dementia reconsidered: The person comes first. Open University Press.

  • Kitwood, T.M., and K. Bredin. 1992. Towards a theory of dementia care: Personhood and well-being. Ageing and Society 12(3): 269–287.

    Article  Google Scholar 

  • Kontos, P.C. 2005. Embodied selfhood in Alzheimer’s disease: Rethinking person-centred care. Dementia 4(4): 553–570.

    Article  Google Scholar 

  • Kontos, P., and W. Martin. 2013. Embodiment and dementia: Exploring critical narratives of selfhood, surveillance, and dementia care. Dementia 12(3): 288–302.

    Article  Google Scholar 

  • Lane, H.P., S. McLachlan, and J. Philip. 2013. The war against dementia: Are we battle weary yet? Age and Ageing 42(3): 281–283.

    Article  Google Scholar 

  • Little, M., and P. Vincent. 2019. The liminal world of dementia. Bioethical Inquiry, 16(2). https://doi.org/10.1007/s11673-019-09917-1.

  • Nolan, M.R., S. Davies, J. Brown, J. Keady, and J. Nolan. 2004. Beyond “person-centred” care: A new vision for gerontological nursing. Journal of Clinical Nursing 13(s1): 45–53.

    Article  Google Scholar 

  • Panza, F., M. Lozupone, G. Logroscino, and B.P. Imbimbo. 2019. A critical appraisal of amyloid-β-targeting therapies for Alzheimer disease. Nature Reviews Neurology 15(2): 73–88.

    Article  Google Scholar 

  • Sabat, S.R. 2001. The experience of Alzheimer’s disease : Life through a tangled veil. Blackwell Publishers.

  • ____. 2019. Dementia beyond pathology: What people diagnosed can teach us about our shared humanity. Journal of Bioethical Inquiry 16(2): https://doi.org/10.1007/s11673-019-09899-0.

  • Zeilig, H. 2014a. Dementia as a cultural metaphor. The Gerontologist 54(2): 258–267.

    Article  Google Scholar 

  • ____. 2014b. Gaps and spaces: Representations of dementia in contemporary British poetry. Dementia 13(2): 160–175.

    Article  Google Scholar 

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Correspondence to Michael Chapman.

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Chapman, M., Philip, J. & Komesaroff, P. Learning From the Cultural Challenge of Dementia. Bioethical Inquiry 16, 159–162 (2019). https://doi.org/10.1007/s11673-019-09916-2

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