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An audiovisual information resource to assist in the transition from completion of potentially curative treatment for cancer through to survivorship: A systematic development process

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Abstract

Introduction

Improvements in cancer screening and treatment are resulting in an increase in the number of cancer patients completing treatment who are apparently cured of their disease. There are few information resources for people at this juncture. An evidence-based DVD was developed for individuals at this stage with information about experiences encountered as a cancer survivor (CS).

Methods

Focus groups and a literature review were conducted to establish the DVD content. The DVD was developed in conjunction with a multidisciplinary committee and according to a recommended best-practice framework. Interviews with CS and evidence-based commentary by health professionals (HP) made up the DVD. The final phase of development was to evaluate the usefulness and acceptability of the DVD with CS and HP.

Results

A 52-min DVD with nine chapters was developed featuring 13 CS, a medical oncologist and a clinical psychologist. Thirty-two CS and 116 HP evaluated the DVD. Both groups considered the DVD was informative (CS 97%; HP 98%), easy to understand (CS and HP 100%), reassuring (CS 91%; HP 92%), relevant to their circumstances (CS 68%; HP 97%), did not contain too much information (CS 75%; HP 71%) and was not distressing to watch (CS 84%; HP 80%).

Discussion

The DVD was well accepted by both CS and HP. Modifications were made as a result of the evaluations, the most significant of which was re-filming of commentary by the two HP. Future research should evaluate the effectiveness of the DVD in controlled trials with outcomes such as quality of long term health, symptom burden and cancer specific distress.

Implications for Cancer Survivors

The DVD is expected to be a useful resource for CS living beyond effective treatment for cancer.

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Acknowledgements

The Peter MacCallum Cancer Foundation provided the funding for the development and evaluation of the DVD. We also wish to extend our thanks to ERC Media and the volunteers who participated in the filming of the DVD for their contributions to this project. Finally, we would like to acknowledge the cancer survivors and health professionals from Peter MacCallum Cancer Centre who evaluated the DVD.

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Authors and Affiliations

  1. Supportive Care Research Group, Peter MacCallum Cancer Centre, Locked Bag 1, A’Beckett Street, Melbourne, Victoria, 8006, Australia

    A. Karahalios, C. Baravelli, M. Carey, P. Schofield, A. Pollard, S. Aranda, J. Franklin & M. Jefford

  2. Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia

    M. Carey, P. Schofield, S. Aranda & M. Jefford

Authors
  1. A. Karahalios
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  2. C. Baravelli
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  3. M. Carey
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  4. P. Schofield
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  5. A. Pollard
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  6. S. Aranda
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  7. J. Franklin
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  8. M. Jefford
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Correspondence to M. Jefford.

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Karahalios, A., Baravelli, C., Carey, M. et al. An audiovisual information resource to assist in the transition from completion of potentially curative treatment for cancer through to survivorship: A systematic development process. J Cancer Surviv 1, 226–236 (2007). https://doi.org/10.1007/s11764-007-0022-1

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