Original researchMultidisciplinary coordinated care for Type 2 diabetes: A qualitative analysis of patient perspectives
Introduction
Optimal diabetes care is interdisciplinary and complex. For example, even a patient with well-controlled diabetes might regularly see a physician, a diabetes nurse educator, and a dietitian just for direct diabetes management. To address difficult-to-control diabetes, or prevent or manage diabetes complications, the number of providers expands considerably: endocrinologists, ophthalmologists, and podiatrists might all be a regular part of some individuals’ care. When possible, team provision of comprehensive diabetes care is the recommended approach, ideally as part of the patient-centered medical home, with team members working at the top of their license [1], [2]. This differs from prior care models, in which the individual doctor–patient relationship was the paramount, and often the sole, relationship.
Very little is known regarding the patient experience of care in the relatively new team care model, and important questions remain unanswered: do patients feel that care is coordinated or fragmented [3]? Do patients feel deprived of time with individual providers [4]? Do patients see themselves as part of the team, or, as one recent study of interprofessional team meetings found, might some feel that “They are talking about me, but not with me” [5]? Further, patient perceptions of care quality may diverge from other quality assessments used in healthcare [6].
Our academic medical center implemented a diabetes team care model within 20 primary care practices that were part of our practice-based research network between 2012 and 2014 [7]. The model shifted the focus of diabetes care from a model that centered on the doctor–patient relationship with referrals to certified diabetes educators and dietitians as needed, to one that emphasized more protocolized, multidisciplinary care involving practice-based nurses and dietitians, embedded locally in clinics [7]. An evaluation of the model found significant improvement in glycemic control for patients with hemoglobin A1c >9.0% [7]. In this project, we sought to understand the patient experience of diabetes care and patient perspective on team care, as well as to determine preferences for the provision of ideal diabetes care, both to shape the model and to identify any potential pitfalls of this approach. Specifically, our goal was to obtain patient perspectives that could drive implementation of patient-centered diabetes care in the primary care setting.
Section snippets
Setting and study sample
The study was conducted in an academic primary care network with 20 affiliated primary care practices in eastern Massachusetts. The diabetes population of the primary care network was approximately 12,000 at the time of the study. Practice types were diverse, including hospital-based academic practices, small group practices, and community health centers. The program has been previously described in greater detail [7]. In brief, the program had the following core elements, shared by all
Participant characteristics
The mean age of the 53 participants was 59 years (range: 33–84 years) (Table 1). The number of participants in the 8 focus groups ranged from 4 to 9. The groups were diverse with regard to race/ethnicity and socioeconomic status: 63% had not attended college, and 43% had Medicaid insurance.
Themes
Major themes and representative quotes are presented in Table 2. The discussions focused on two broad areas—experiences with members of their diabetes care team in the current system, and desired components
Discussion
Patient focus groups revealed that patients with type 2 diabetes are very open to a team care approach, with little concern about fragmentation and an expansive view of the care team, one that encompasses a wider range of providers than is conventionally envisioned. Patients generally felt that the complexity of diabetes care was too great for a single provider, and looked to nurses, dietitians, and ideally, support for exercise and help navigating socioeconomic barriers as potential components
Conclusions
As diabetes team care is more widely adopted, differing approaches to implementation will represent opportunities to learn what is and what is not working. We believe it is imperative that evaluations of new care models include the patient perspective, and that team care implementation efforts incorporate lessons learned from patients. Broad, multi-disciplinary, and well-coordinated teams, guided by patient experience, implemented well, can improve diabetes management.
Funding
Seth A. Berkowitz’s role in the research reported was supported, in part, by the National Institute for Diabetes and Digestive and Kidney Disease of the National Institutes of Health, under Award Number K23DK109200. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Conflict of interest
The authors state that they have no conflict of interest.
Acknowledgements
We thank the focus group participants for sharing their perspectives.
References (16)
- et al.
Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango)
Soc. Sci. Med. (1982)
(1997) The theory of planned behavior
Organ. Behav. Hum. Decis. Process.
(1991)- et al.
Patient-centered medical home and diabetes
Diabetes Care
(2011) Practices in the Spotlight: The Medical Home and Diabetes Care
(2011)- et al.
Multidisciplinary care: experience of patients with complex needs
Aust. J. Prim. Health
(2014) - et al.
Structured diabetes care leads to differences in organization of care in general practices: the healthcare professional and patient perspective
BMC Health Serv. Res.
(2011) - et al.
“They are talking about me, but not with me”: a focus group study to explore the patient perspective on interprofessional team meetings in primary care
Patient
(2017) - et al.
Patients’ experience of chronic illness care in a network of teaching settings
Can. Fam. Phys.
(2012)
Cited by (20)
Professional continuous glucose monitoring and endocrinology eConsult for adults with type 2 diabetes in primary care: Results of a clinical pilot program
2021, Journal of Clinical and Translational EndocrinologyMultidisciplinary team approach to diabetes. An outlook on providers’ and patients’ perspectives
2020, Primary Care DiabetesCitation Excerpt :N) [16] Most patients endorsed the benefits of having a multidisciplinary diabetes care model as compared to the usual care [15,19,27–29]. Patients expressed high levels of satisfaction and appreciated the convenience that arose with the MDT model [19,27].
Provider-Perceived Value of Interprofessional Team Meetings as a Core Element of a Lifestyle Medicine Program: A Mixed-Methods Analysis of One Center’s Experience
2024, American Journal of Lifestyle MedicineExpanding general practice with interprofessional teams: a mixed-methods patient perspective study
2023, BMC Health Services Research