Perspectives in Pediatric NeurologyExtraordinary Survival: What Does It Take?
Section snippets
Discussion
Whilst the intensity of care required to facilitate this boy's prolonged survival was exceptional, his life can illustrate a range of ethical issues which might apply to many children and families with life-limiting illnesses.
In life-limiting conditions, the ideal is shared decision-making, with physicians and parents making joint decisions about goals of care. Today parents access information and online communities as they strive to find best care for their child, and this often creates the
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