Life and treatment goals of individuals hospitalized for first-episode nonaffective psychosis
Introduction
Nonaffective psychotic disorders often emerge during late adolescence or early adulthood, a time in life when individuals normally achieve important educational, vocational, and relationship milestones. People with emerging schizophrenia spectrum disorders are often derailed at this stage, developing significant educational, occupational, and interpersonal deficits (Hafner et al., 1995). The early stages of psychosis are often considered to be a “critical period” (Birchwood, 1999), as long-term follow-up studies show that two-year outcomes strongly predict longer-term illness outcomes (Harrison et al., 2001). Evidence suggests that treatment is more effective when implemented earlier, though early intervention is a relatively new concept in the mental health field (Drake et al., 2000).
The early intervention paradigm involves timely, phase-specific initiation of both pharmacologic and evidence-based psychosocial treatments. Yet, these ideal approaches are often complicated by little availability of specialized services and problems with patients' insight and adherence. Impaired insight, which is not a willful denial but rather a part of the illness itself, commonly results in noncompliance with medications and psychosocial interventions (Lysaker and Bell, 1994, Burton, 2005, Tasang et al., 2009) and differences in treatment goals between patients and their providers only compound this situation (Chue, 2006, Diamond, 2006). To bridge this gap, the recovery model, a more personalized and patient-centered approach to caring for persons who have mental illnesses, has emerged (Jacobson and Greenley, 2001).
The traditional medical concept of “recovery” (i.e., a person is cured from or no longer contends with an illness), has been replaced by some within the medical field with a new conceptualization, which is believed to better account for the oftentimes persistent nature of serious mental illnesses. Within this framework, recovery is thought to be a process rather than an outcome, and is focused on the individual and his or her journey toward attainment of personal recovery and life goals, rather than just the absence of symptoms (Buckley et al., 2007). Fundamental elements of the recovery model include consumers assuming more responsibility in developing plans for achieving their goals, and working collaboratively with mental health providers and their support systems (Jacobson and Greenley, 2001).
To embrace the recovery model, clinicians, researchers, and program planners must understand consumers' own goals. At present, there is a paucity of research investigating what people with first-episode psychosis want from treatment. The objective of this investigation was to summarize the life and treatment goals of a sample of individuals hospitalized for treatment of first-episode nonaffective psychosis, along with their perception of how mental health professionals could assist them. Understanding their goals may reveal essential implications for recovery-oriented tailoring of early psychosocial interventions.
Section snippets
Setting and sample
Participants were recruited from the psychiatric units of a large, urban, university-affiliated, public-sector hospital (n = 82) and a suburban county psychiatric crisis center (n = 18), as part of a larger, ongoing study in the southeastern United States. These treatment centers predominantly serve urban African Americans. To be eligible, individuals must be hospitalized for a first episode of a nonaffective psychotic disorder and provide written informed consent. Those with known mental
Results
The participants (n = 100) were, on average, 24.3 ± 5.1 years of age, with a mean educational attainment of 11.7 ± 2.9 years. As shown in Table 1, this sample is predominantly single, male, African American, and unemployed. Other demographic characteristics, as well as SCID-derived diagnoses for psychotic, cannabis use, and alcohol use disorders are presented in Table 1.
When asked to list their top three life goals for the upcoming years, the top priorities, as shown in Table 2, included goals in the
Discussion
Responses from open-ended questions about life goals in this sample of individuals with first-episode psychosis were dominated by: employment, education, relationships, housing, and health. The most frequently cited treatment goals were staying on medications and addressing specific symptoms. Perceived opportunities for assistance from mental health professionals revolved around having someone to talk to, obtaining medications, and symptom relief. However, participants appeared to be remarkably
Acknowledgements
This research was supported by the National Institute of Mental Health grant R01 MH081011 to the last author.
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At the time when this research was conducted, Ms. Broussard and Dr. Compton were with the Emory University School of Medicine, Atlanta, GA.