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The Potential of a Narrative and Creative Arts Approach to Enhance Transition Outcomes for Indigenous Australians Following Traumatic Brain Injury

Published online by Cambridge University Press:  31 July 2019

India Bohanna ,
Michelle Fitts ,
Katrina Bird ,
Jennifer Fleming ,
John Gilroy ,
Alan Clough ,
Adrian Esterman ,
Paul Maruff  and
Martin Potter
India Bohanna*
Affiliation:
College of Healthcare Sciences, James Cook University, Smithfield, Queensland, Australia
Michelle Fitts
Affiliation:
Centre for Alcohol Policy Research, La Trobe University, Melbourne 3086
Katrina Bird
Affiliation:
College of Public Health, Medical & Veterinary Science, James Cook University Cairns Campus, Cairns, Queensland, Australia
Jennifer Fleming
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia
John Gilroy
Affiliation:
Health Systems and Global Populations Faculty Research Group, Faculty of Health Sciences, The University of Sydney, Sydney, New South Wales, Australia
Alan Clough
Affiliation:
Community-based Health Promotion and Prevention Studies Group, Australian Institute of Tropical Health and Medicine, James Cook University Cairns Campus, Cairns, Queensland, Australia
Adrian Esterman
Affiliation:
Sansom Institute for Health Research, University of South Australia, Adelaide, South Australia, Australia
Paul Maruff
Affiliation:
Department of Medicine, Austin Health, Florey Institute of Neuroscience and Mental Health, The University of Melbourne, Heidelberg, Victoria, Australia
Martin Potter
Affiliation:
School of Communication and Creative Arts, Deakin University School of Communication and Creative Arts, Burwood, Victoria, Australia
*
*Corresponding author. Email: india.bohanna@jcu.edu.au
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Abstract

Background:

Increasingly, narrative and creative arts approaches are being used to enhance recovery after traumatic brain injury (TBI). Narrative and arts-based approaches congruent with Indigenous storytelling may therefore provide benefit during the transition from hospital to home for some Indigenous TBI patients. This qualitative study explored the use and impact of this approach as part of a larger, longitudinal study of TBI transition with Indigenous Australians.

Method:

A combined narrative and arts-based approach was used with one Indigenous Australian artist to describe his transition experiences following TBI. Together with the researchers and filmmaking team, the artist was involved in aspects of the process. The artist contributed two paintings, detailing the story of his life and TBI. Based on the artworks, a film was co-created. Following the viewing of the film, impacts of the narrative and arts-based process were examined through semi-structured interviews with the artist, a service provider and a family member. Multiple sources of data were used in the final thematic analysis including transcripts of the interviews and filming, paintings (including storylines) and researcher notes.

Results:

Positive impacts from the process for the artist included positive challenge; healing and identity; understanding TBI and raising awareness.

Discussion:

This approach may enable the individual to take ownership over their transition story and to make sense of their life following TBI at a critical point in their recovery. A combined narrative and arts-based approach has potential as a culturally responsive rehabilitation tool for use with Indigenous Australians during the transition period following TBI.

Keywords

Traumatic brain injuryAboriginal and Torres Strait Islander healthnarrativerehabilitationcultural safety
Type
Articles
Information
Brain Impairment , Volume 20 , Special Issue 2: Brain Impairment in Indigenous Populations , September 2019 , pp. 160 - 170
Copyright
© Australasian Society for the Study of Brain Impairment 2019 

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Footnotes

†

Joint first authors

References

Armstrong, E., Hersh, D., Hayward, C., Fraser, J., & Brown, M. (2012). Living with aphasia: Three Indigenous Australian stories. International Journal of Speech and Language Pathology, 14(3), 271–280. doi: 10.3109/17549507.2011.663790.CrossRefGoogle ScholarPubMed
Baker, F. A., Rickard, N., Tamplin, J., & Roddy, C. (2015). Flow and meaningfulness as mechanisms of change in self-concept and well-being following a songwriting intervention for people in the early phase of neurorehabilitation. Frontiers in Human Neuroscience, 9, 299. doi: 10.3389/fnhum.2015.00299.CrossRefGoogle ScholarPubMed
Baker, F. A., Tamplin, J., MacDonald, R. A. R., Ponsford, J., Roddy, C., Lee, C., & Rickard, N. (2017). Exploring the self through songwriting: An analysis of songs composed by people with acquired neurodisability in an inpatient rehabilitation program. Journal of Music Therapy, 54(1), 35–54. doi: 10.1093/jmt/thw018.CrossRefGoogle Scholar
Barney, K., & Mackinlay, E. (2010). “Singing Trauma Trails”: Songs of the stolen generations in Indigenous Australia. Music and Politics, 4(2). doi: 10.3998/mp.9460447.0004.202.CrossRefGoogle Scholar
Bohanna, I., Fitts, M. S., Bird, K., Fleming, J., Gilroy, J., Esterman, A., … Clough, A. R. (2018). The transition from hospital to home: Protocol for a longitudinal study of Australian Aboriginal and Torres Strait Islander Traumatic Brain Injury (TBI). Brain Impairment, 19(3): 1–12. doi: 10.1017/BrImp.2018.1.CrossRefGoogle Scholar
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa.CrossRefGoogle Scholar
Cameron, L. (2010). Using the arts as a therapeutic tool for counselling-an Australian Aboriginal perspective. Procedia-Social and Behavioral Sciences, 5, 403–407. doi: 10.1016/j.sbspro.2010.07.112.CrossRefGoogle Scholar
Cunsolo Willox, A., Harper, S. L., Edge, V. L., Rigolet Inuit Community Government, & ‘My Word’: Storytelling and Digital Media Lab. (2013). Storytelling in a digital age: Digital storytelling as an emerging narrative method for preserving and promoting indigenous oral wisdom. Qualitative Research, 13(2), 127–147. doi: 10.1177/1468794112446105.CrossRefGoogle Scholar
D’Cruz, K., Douglas, J., & Serry, T. (2019). Personal narrative approaches in rehabilitation following traumatic brain injury: A synthesis of qualitative research. Neuropsychological Rehabilitation, 29(7), 985–1004. doi: 10.1080/09602011.2017.1361844.CrossRefGoogle ScholarPubMed
Doig, E. Fleming, J., & Tooth, L. (2001). Patterns of community integration 2-5 years post-discharge from brain injury rehabilitation. Brain Injury, 15(9), 747–762. doi: 10.1080/02699050119845.CrossRefGoogle ScholarPubMed
Eron, J. B., & Lund, T. W. (1996). Narrative solutions in brief therapy. New York: Guilford Press.Google Scholar
Fitts, M. S., Bird, K., Gilroy, J., Fleming, J., Clough, A. R., … Bohanna, I. (Under Review). The transition support needs of Indigenous Australians following traumatic brain injury. Brain Impairment.Google Scholar
Gauld, S., Smith, S., & Kendall, M. B. (2018). Exploring the impact of sharing personal narratives of brain injury through film in Australian Indigenous communities. Disability and Rehabilitation, 4. doi: 100037D05SG2018.Google Scholar
Geia, L. K., Hayes, B., & Usher, K. (2013). Yarning/Aboriginal storytelling: Towards an understanding of an Indigenous perspective and its implications for research practice. Contemporary Nurse, 46(1), 13–17. doi: 10.5172/conu.2013.46.1.13.CrossRefGoogle ScholarPubMed
Hogan, B. A. (1999). Narrative therapy in rehabilitation after brain injury: A case study. Neurorehabilitation, 13(1), 21–25.Google Scholar
Hovane, V., Dalton, T., & Smith, P. (2014). Aboriginal offender rehabilitation programs. In Purdie, N., Dudgeon, P., & Walker, R. (Eds.), Working together: Aboriginal and Torres Strait Islander mental health and wellbeing principles and practice, pp. 509–519, Commonwealth of Australia, Barton ACT.Google Scholar
Hunt, J. (2013). Engaging with Indigenous Australia—exploring the conditions for effective relationships with Aboriginal and Torres Strait Islander communities. Issues paper no. 5. Produced for the Closing the Gap Clearinghouse. Canberra: Australian Institute of Health and Welfare & Melbourne: Australian Institute of Family Studies.Google Scholar
Jamieson, L. M., Harrison, J. E., & Berry, J. G. (2008). Hospitalisation for head injury due to assault among Indigenous and non-Indigenous Australians, July 1999-June 2005. Medical Journal of Australia, 188(10), 576–579. doi: 10.5694/j.1326-5377.2008.tb01793.x.Google ScholarPubMed
Katzenellenbogen, J. M., Atkins, E., Thompson, S. C., Hersh, D., Coffin, J., Flicker, L., … Greenland, M. E. (2018). Missing voices: Profile, extent, and 12-month outcomes of nonfatal traumatic brain injury in aboriginal and non-aboriginal adults in Western Australia using linked administrative records. The Journal of Head Trauma Rehabilitation, 33(6), 412–423. doi: 10.1097/HTR.0000000000000371.Google ScholarPubMed
Lakhani, A., Townsend, C., & Bishara, J. (2017). Traumatic brain injury amongst indigenous people: A systematic review. Brain Injury, 31(13–14), 1718–1730. doi: 10.1080/02699052.2017.1374468.CrossRefGoogle ScholarPubMed
Levack, W. M., Kayes, N. M., & Fadyl, J. K. (2010). Experience of recovery and outcome following traumatic brain injury: A metasynthesis of qualitative research. Disability and Rehabilitation, 32(12), 986–999. doi: 10.3109/09638281003775394.CrossRefGoogle ScholarPubMed
Moore, E., Indig, D., & Haysom, L. (2014). Traumatic brain injury, mental health, substance use, and offending among incarcerated young people. Journal of head trauma rehabilitation, 29(3), 239–247.CrossRefGoogle ScholarPubMed
Morris, S. D. (2004). Re-building identity through narrative following traumatic brain injury. The Journal of Cognitive Rehabilitation, 22, 15–21.Google Scholar
Muirhead, S., & de Leeuw, S. (2012). Art and wellness: The importance of art for Aboriginal peoples’ health and healing. Retrieved from https://artshealthnetwork.ca/sites/default/files/art_wellness_en_web.pdf. Google Scholar
Nagel, T., & Thompson, C. (2007). AIMHI NT ‘Mental Health Story Teller Mob’: Developing stories in mental health. Australian e-Journal for the Advancement of Mental Health, 6(2), 119–124. doi: 10.5172/jamh.6.2.119.CrossRefGoogle Scholar
Nalder, E., Fleming, J., Cornwell, P., Foster, M., Ownsworth, T., Shields, C., & Haines, T. (2012). Recording sentinel events in the life course of individuals with acquired brain injury: A preliminary study. Brain Injury, 26(11), 1381–1396. doi: 10.3109/02699052.2012.676225.CrossRefGoogle ScholarPubMed
Nalder, E., Fleming, J., Cornwell, P., Shields, C., & Foster, M. (2013). Reflections on life: Experiences of individuals with brain injury during the transition from hospital to home. Brain Injury, 27(11), 1294–1303. doi: 10.3109/02699052.2013.823560.CrossRefGoogle ScholarPubMed
Ownsworth, T. (2014). Self identity after brain injury. London and New York: Psychology Press.Google ScholarPubMed
Perruzza, N., & Kinsella, E. A. (2010). Creative arts occupations in therapeutic practice: A review of the literature. British Journal of Occupational Therapy, 73(6), 261–268.CrossRefGoogle Scholar
Pope, C., Ziebland, S., & Mays, N. (2000). Analysing qualitative data. BMJ, 320(7227), 114–116. doi: 10.1136/bmj.320.7227.114.CrossRefGoogle ScholarPubMed
Rasmussen, M. K., Donoghue, D. A., & Sheehan, N. W. (2018). Suicide/self-harm-risk reducing effects of an Aboriginal art program for Aboriginal prisoners. Advances in Mental Health, 16(2), 141–151. doi: 10.1080/18387357.2017.1413950.CrossRefGoogle Scholar
Reynolds, F., & Prior, S. (2003). ‘A lifestyle coat-hanger’: A phenomenological study of the meanings of artwork for women coping with chronic illness and disability. Disability and Rehabilitation, 25(14), 785–794. doi: 10.1080/0963828031000093486.CrossRefGoogle ScholarPubMed
Symons, J., Clark, H., Williams, K., Hansen, E., & Orpin, P. (2011). Visual art in physical rehabilitation: experiences of people with neurological conditions. British Journal of Occupational Therapy, 74(1), 44–52. doi: 10.4276/030802211X12947686093729.CrossRefGoogle Scholar
Tamplin, J. (2006). Song collage technique: A new approach to songwriting. Nordic Journal of Music Therapy, 15(2), 177–190. doi: 10.1080/08098130609478164.CrossRefGoogle Scholar
Tamplin, J., Baker, F., Macdonald, R. A. R., Roddy, C., & Rickard, N. (2015). A theoretical framework and therapeutic songwriting protocol to promote integration of self-concept in people with acquired neurological injuries. Nordic Journal of Music Therapy, 25(2), 111–133. doi: 10.1080/08098131.2015.1011208.CrossRefGoogle Scholar
Tanev, K. S., Pentel, K. Z., Kredlow, M. A., & Charney, M. E. (2014). PTSD and TBI co-morbidity: Scope, clinical presentation and treatment options. Brain Injury, 28(3), 261–270. doi: 10.3109/02699052.2013.873821.CrossRefGoogle ScholarPubMed
Thomas, D. R. (2017). Feedback from research participants: are member checks useful in qualitative research? Qualitative Research in Psychology, 14(1), 23–41. doi: 10.1080/14780887.2016.1219435.CrossRefGoogle Scholar
Walker, M., Fredericks, B., Mills, K., & Anderson, D. (2014) “Yarning” as a method for community-based health research with indigenous women: The indigenous women’s wellness research program. Health Care for Women International, 35(10), 1216–1226. doi: 10.1080/07399332.2013.815754.CrossRefGoogle ScholarPubMed