skip to main content
10.1145/1124772.1124797acmconferencesArticle/Chapter ViewAbstractPublication PageschiConference Proceedingsconference-collections
Article

Participatory design with proxies: developing a desktop-PDA system to support people with aphasia

Published:22 April 2006Publication History

ABSTRACT

In this paper, we describe the design and preliminary evaluation of a hybrid desktop-handheld system developed to support individuals with aphasia, a disorder which impairs the ability to speak, read, write, or understand language. The system allows its users to develop speech communication through images and sound on a desktop computer and download this speech to a mobile device that can then support communication outside the home. Using a desktop computer for input addresses some of this population's difficulties interacting with handheld devices, while the mobile device addresses stigma and portability issues. A modified participatory design approach was used in which proxies, that is, speech-language pathologists who work with aphasic individuals, assumed the role normally filled by users. This was done because of the difficulties in communicating with the target population and the high variability in aphasic disorders. In addition, the paper presents a case study of the proxy-use participatory design process that illustrates how different interview techniques resulted in different user feedback.

References

  1. The aphasia institute: What is aphasia? http://www.aphasia.ca/about/whatis.htmlGoogle ScholarGoogle Scholar
  2. Beukelman, D.R., and Mirenda, P. Augmentative and alternative communication: Management of severe communication disorders in children and adults (2nd Ed.). Paul H. Brooks Publishing Co, Baltimore, MD, USA, 1998.Google ScholarGoogle Scholar
  3. Bungalow Software. http://www.bungalowsoftware.com.Google ScholarGoogle Scholar
  4. Carmien, S. MAPS: PDA scaffolding for independence for persons with cognitive impairments. Human-computer interaction consortium (2002). http://www.cs.colorado.edu/~l3d/clever/projects/maps/carmien_HCIC2002.pdf.Google ScholarGoogle Scholar
  5. Cohene, T., Baecker, R., Marziali, E., Designing interactive life story multimedia for a family affected by Alzheimer's disease: a case study. In CHI '05 Extended Abstracts on Human Factors in Computing Systems, ACM Press (2005), 1300--1303. Google ScholarGoogle ScholarDigital LibraryDigital Library
  6. Davies, R. The Ethnographically Informed Participatory Design of a PDA Application to Support Communication. Master's Thesis, University of British Columbia, Canada, 2004.Google ScholarGoogle Scholar
  7. Davies, R., Marcella, S., McGrenere, J., and Purves, B. The ethnographically informed participatory design of a PDA application to support communication. In Proc. ACM ASSETS 2004 (2004), 153--160. Google ScholarGoogle ScholarDigital LibraryDigital Library
  8. Dynavox Systems. http://www.dynavoxsys.com.Google ScholarGoogle Scholar
  9. Enkidu Research. http://www.enkidu.net.Google ScholarGoogle Scholar
  10. Goodglass, H., Kaplan, E., and Barresi, B. The assessment of aphasia and related disorders (3rd Ed.). Lippincott Williams, & Wilkins, Philadelphia, PA, USA, 2001.Google ScholarGoogle Scholar
  11. Gus Communications. http://www.gusinc.com.Google ScholarGoogle Scholar
  12. Hine, N., Arnott, D., and Smith, D. (2003). Design issues encountered in the development of a mobile multimedia augmentative communication service. In Universal Access in the Information Society 2 (2003), 255--264.Google ScholarGoogle ScholarDigital LibraryDigital Library
  13. Hirsch, T., Forlizzi, J., Hyder, E., Goetz, J., Kurtz, C., and Stroback, J. The ELDer project: social, emotional, and environmental factors in the design of eldercare technologies. In Proc. ACM conference on Universal usability, ACM Press (2000), 72--79. Google ScholarGoogle ScholarDigital LibraryDigital Library
  14. Inglis, E.A., Szymkowiak, A., Gregor, P., Newell, A. F., Hine, N., Shah, P., Wilson, B.A. and Evans, J. Issues Surrounding the User-Centred Development of a new Interactive Memory Aid. In Universal Access in the Information Society 2, 3(2003), 226--234.Google ScholarGoogle ScholarDigital LibraryDigital Library
  15. Kauhanen, M.L., Korpelainen, J. T., Hiltunen, P., Määttä, R., Mononen, H., Brusin, E., et al. Aphasia, depression, and non-verbal cognitive impairment in ischaemic stroke. Cerebrovascular Diseases 10, 6 (2000), 455--461.Google ScholarGoogle ScholarCross RefCross Ref
  16. Lingraphicare, Inc. http://www.aphasia.com.Google ScholarGoogle Scholar
  17. Martin, C., Dellatolas, G., Viguier, D., Willadino-Braga, L., and Deloche, G. Subjective experience after stroke. Applied Neuropsychology 9, 3 (2002), 148--158.Google ScholarGoogle ScholarCross RefCross Ref
  18. Moffatt, K. Designing Technology For and With Special Populations: An Exploration of Participatory Design with People with Aphasia. Master's Thesis, University of British Columbia, Canada, 2004.Google ScholarGoogle Scholar
  19. Moffatt, K., McGrenere, J., Purves, B., and Klawe, M. The participatory design of a sound and image enhanced daily planner for people with aphasia. In Proc. CHI 2004, ACM Press (2004), 407--414. Google ScholarGoogle ScholarDigital LibraryDigital Library
  20. Paul, D.R., Frattali, C.M., Holland, A.L., Thompson, C.K., Caperton, C.J., and Slater S.C. Quality of Communication Life Scale (ASHA QCL). American Speech-Language-Hearing Association, Rockville, MD, USA, 2004.Google ScholarGoogle Scholar
  21. Prentke Romich Company. http://www.prentrom.com.Google ScholarGoogle Scholar
  22. Rosson, M. B., and Carroll, J. M. Usability Engineering: Scenario-Based Development of Human-Computer Interaction. Morgan-Kaufman, New York, NY, USA, 2002. Google ScholarGoogle ScholarDigital LibraryDigital Library
  23. Thorburn, L., Newhoff, M., and Rubin, S. Ability of subjects with aphasia to visually analyze written language, pantomime, and iconographic symbols. American Journal of Speech-Language Pathology 4 (1995), 174--179.Google ScholarGoogle ScholarCross RefCross Ref
  24. Waller, A., Dennis, F., Brodie, J., and Cairns, A.Y. Evaluating the use of TalksBac, a predictive communication device for nonfluent adults with aphasia. International Journal of Language and Communication Disorders 33, 1 (1998), 45--70.Google ScholarGoogle Scholar
  25. Waller, A. and Newell, A. Towards a narrative-based augmentative communication system. European Journal of Disorders of Communication 32 (1997), 289--306.Google ScholarGoogle ScholarCross RefCross Ref
  26. Wu, M., Baecker, R., and Richards, B. Participatory Design of an Orientation Aid for Amnesics. In Proc. CHI 2005, ACM Press (2005), 511--520. Google ScholarGoogle ScholarDigital LibraryDigital Library

Index Terms

  1. Participatory design with proxies: developing a desktop-PDA system to support people with aphasia

      Recommendations

      Comments

      Login options

      Check if you have access through your login credentials or your institution to get full access on this article.

      Sign in
      • Published in

        cover image ACM Conferences
        CHI '06: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
        April 2006
        1353 pages
        ISBN:1595933727
        DOI:10.1145/1124772

        Copyright © 2006 ACM

        Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

        Publisher

        Association for Computing Machinery

        New York, NY, United States

        Publication History

        • Published: 22 April 2006

        Permissions

        Request permissions about this article.

        Request Permissions

        Check for updates

        Qualifiers

        • Article

        Acceptance Rates

        Overall Acceptance Rate6,199of26,314submissions,24%

      PDF Format

      View or Download as a PDF file.

      PDF

      eReader

      View online with eReader.

      eReader