Dorota Chapko
ABSTRACT
Public attitudes towards learning disabilities (LDs) are generally reported as positive, inclusive and empathetic. However, these findings do not reflect the lived experiences of people with LDs. To shed light on this disparity, a team of co-researchers with LDs created the first online survey to challenge public understanding of LDs, asking questions in ways that are important to them and represent how they see themselves. Here, we describe and evaluate the process of creating an accessible survey platform and an online survey in a research team consisting of academic and non-academic professionals with and without LDs or autism. Through this inclusive research process, the co-designed survey met the expectations of the co-researchers and was well-received by the initial survey respondents. We reflect on the co-researchers' perspectives following the study completion, and consider the difficulties and advantages we encountered deploying such approaches and their potential implications on future survey data analysis.
Supplemental Material
Available for Download
zip
paper151aux.zip (1.1 MB)
The files in supplement 1 represent examples of paper prototyping outputs from a participatory design workshop with co-designers form the learning disabled and autism community that is detailed in the paper. There are three files that illustrate set interface suggestions for a mobile version of the survey application and one file that proposes a look and feel for the application on a tablet or desktop computer. PDF. The file in supplement 2 contains data based on the second usability test. Excel.
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Index Terms
- "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities
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