Thomas Kosch
Thomas Grote
Albrecht Schmidt
Paweł W. Woźniak
ABSTRACT
Assistive systems supporting users with cognitive impairments are commonplace in sheltered living facilities. Assistive systems may collect data or analyze user behavior to tailor services for the users’ type and level of impairment. However, ways to integrate ethical standards into the design and deployment of assistive systems for users with cognitive impairments are not yet established. We conducted a qualitative inquiry inspired by literature in ethics to address this. We interviewed caretakers and tenants with cognitive impairments in a sheltered living facility. We present four themes that describe the lived practice of ethics when using assistive systems: Autonomy & Independence, Confidence in Technology, Motivation, and Communal Living. Combining the themes with ethics theory, we derived five design implications for the ethical design of assistive systems. Our work proposes boundaries in which new assistive systems can be designed ethically and guide future assistive systems for marginalized populations.
- Britt Almberg, Margareta Grafström, and Bengt Winblad. 1997. Caring for a demented elderly person - burden and burnout among caregiving relatives. Journal of Advanced Nursing 25, 1 (1997), 109–116. https://doi.org/10.1046/j.1365-2648.1997.1997025109.x arXiv:https://onlinelibrary.wiley.com/doi/pdf/10.1046/j.1365-2648.1997.1997025109.xGoogle Scholar
Cross Ref
- Amaya Arcelus, Megan Howell Jones, Rafik Goubran, and Frank Knoefel. 2007. Integration of Smart Home Technologies in a Health Monitoring System for the Elderly. In 21st International Conference on Advanced Information Networking and Applications Workshops (AINAW’07), Vol. 2. 820–825. https://doi.org/10.1109/AINAW.2007.209Google ScholarDigital Library
- Nomy Arpaly. 2002. Unprincipled virtue: An inquiry into moral agency. Oxford University Press.Google Scholar
- Liane Bächler, Andreas Bächler, Markus Funk, Sven Autenrieth, Georg Krüll, Thomas Hörz, and Thomas Heidenreich. 2016. The Use and Impact of an Assistance System for Supporting Participation in Employment for Individuals with Cognitive Disabilities. In International Conference on Computers Helping People with Special Needs. Springer, 329–332. https://doi.org/10.1007/978-3-319-41267-2_46Google ScholarCross Ref
- Solon Barocas and Helen Nissenbaum. 2014. Big Data’s End Run Around Procedural Privacy Protections. Commun. ACM 57, 11 (Oct. 2014), 31–33. https://doi.org/10.1145/2668897Google ScholarDigital Library
- Helen Bartlett and Wendy Martin. 2002. Ethical issues in dementia care research. The perspectives of people with dementia: Research methods and motivations (2002), 47–61.Google Scholar
- Tom L. Beauchamp and James F. Childress. 2001. Principles of biomedical ethics. Oxford University Press, USA.Google Scholar
- Cynthia L. Bennett, Erin Brady, and Stacy M. Branham. 2018. Interdependence as a Frame for Assistive Technology Research and Design. In Proceedings of the 20th International ACM SIGACCESS Conference on Computers and Accessibility(Galway, Ireland) (ASSETS ’18). Association for Computing Machinery, New York, NY, USA, 161–173. https://doi.org/10.1145/3234695.3236348Google ScholarDigital Library
- Cynthia L. Bennett and Os Keyes. 2020. What is the Point of Fairness? Disability, AI and the Complexity of Justice. SIGACCESS Access. Comput.125, Article 5 (March 2020), 1 pages. https://doi.org/10.1145/3386296.3386301Google ScholarDigital Library
- Cynthia L. Bennett, Daniela K. Rosner, and Alex S. Taylor. 2020. The Care Work of Access. Association for Computing Machinery, New York, NY, USA, 1–15. https://doi.org/10.1145/3313831.3376568Google ScholarDigital Library
- Daniel Berdichevsky and Erik Neuenschwander. 1999. Toward an Ethics of Persuasive Technology. Commun. ACM 42, 5 (May 1999), 51–58. https://doi.org/10.1145/301353.301410Google ScholarDigital Library
- Ashok J. Bharucha, Vivek Anand, Jodi Forlizzi, Mary Amanda Dew, Charles F. Reynolds, Scott Stevens, and Howard Wactlar. 2009. Intelligent Assistive Technology Applications to Dementia Care: Current Capabilities, Limitations, and Future Challenges. The American Journal of Geriatric Psychiatry 17, 2(2009), 88 – 104. https://doi.org/10.1097/JGP.0b013e318187dde5Google ScholarCross Ref
- Sidsel Bjørneby, Päivi Topo, Suzanne Cahill, Emer Begley, Kerry Jones, Inger Hagen, Jurate Macijauskiene, and Torhild Holthe. 2004. Ethical Considerations in the ENABLE Project. Dementia 3, 3 (2004), 297–312. https://doi.org/10.1177/1471301204045162Google ScholarCross Ref
- Ann Blandford, Dominic Furniss, and Stephann Makri. 2016. Qualitative HCI research: Going behind the scenes. Synthesis lectures on human-centered informatics 9, 1(2016), 1–115.Google Scholar
- Patrick Boissy, Hélène Corriveau, François Michaud, Daniel Labonté, and Marie-Pier Royer. 2007. A qualitative study of in-home robotic telepresence for home care of community-living elderly subjects. Journal of Telemedicine and Telecare 13, 2 (2007), 79–84. https://doi.org/10.1258/135763307780096195Google ScholarCross Ref
- Christopher Boorse. 2010. Disability and Medical Theory. Springer Netherlands, Dordrecht, 55–88. https://doi.org/10.1007/978-90-481-2477-0_4Google Scholar
- Philip Brey. 2005. Freedom and privacy in ambient intelligence. Ethics and Information Technology 7, 3 (2005), 157–166.Google ScholarDigital Library
- S. Brownsell, D. A. Bradley, R. Bragg, P. Catlin, and J. Carlier. 2000. Do community alarm users want telecare?Journal of Telemedicine and Telecare 6, 4 (2000), 199–204. https://doi.org/10.1258/1357633001935356Google Scholar
- Sarah Buss. 2005. Valuing Autonomy and Respecting Persons: Manipulation, Seduction, and the Basis of Moral Constraints. Ethics 115, 2 (2005), 195–235. https://doi.org/10.1086/426304Google Scholar
- Sarah Buss and Andrea Westlund. 2002. Personal autonomy. (2002).Google Scholar
- Clara Caldeira, Matthew Bietz, Marisol Vidauri, and Yunan Chen. 2017. Senior Care for Aging in Place: Balancing Assistance and Independence. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (Portland, Oregon, USA) (CSCW ’17). Association for Computing Machinery, New York, NY, USA, 1605–1617. https://doi.org/10.1145/2998181.2998206Google ScholarDigital Library
- Antonio Carlo, Marzia Baldereschi, Luigi Amaducci, Stefania Maggi, Francesco Grigoletto, Guglielmo Scarlato, and Domenico and Inzitari. 2000. Cognitive Impairment Without Dementia in Older People: Prevalence, Vascular Risk Factors, Impact on Disability. The Italian Longitudinal Study on Aging. Journal of the American Geriatrics Society 48, 7 (2000), 775–782. https://doi.org/10.1111/j.1532-5415.2000.tb04752.xGoogle ScholarCross Ref
- Marilyn Cash. 2003. Assistive technology and people with dementia. Reviews in Clinical Gerontology 13, 4 (2003), 313–319. https://doi.org/10.1017/S0959259804001169Google ScholarCross Ref
- Andy Clark and David Chalmers. 1998. The Extended Mind. Analysis 58, 1 (1998), 7–19. https://doi.org/10.1111/1467-8284.00096Google ScholarCross Ref
- Mark Coeckelbergh. 2010. Health Care, Capabilities, and AI Assistive Technologies. Ethical Theory and Moral Practice 13, 2 (01 Apr 2010), 181–190. https://doi.org/10.1007/s10677-009-9186-2Google Scholar
- Karen L. Courtney. 2008. Privacy and senior willingness to adopt smart home information technology in residential care facilities. (2008). https://doi.org/10.3414/ME9104Google Scholar
- Karen L. Courtney, George Demeris, Marilyn Rantz, and Marjorie Skubic. 2008. Needing smart home technologies: the perspectives of older adults in continuing care retirement communities.(2008).Google Scholar
- Laurin D., Verreault R., Lindsay J., MacPherson K., and Rockwood K.2001. Physical activity and risk of cognitive impairment and dementia in elderly persons. Archives of Neurology 58, 3 (2001), 498–504. https://doi.org/10.1001/archneur.58.3.498Google ScholarCross Ref
- Maitraye Das, Darren Gergle, and Anne Marie Piper. 2019. ”It Doesn’t Win You Friends”: Understanding Accessibility in Collaborative Writing for People with Vision Impairments. Proc. ACM Hum.-Comput. Interact. 3, CSCW, Article 191 (Nov. 2019), 26 pages. https://doi.org/10.1145/3359293Google ScholarDigital Library
- Laura Davy. 2014. Philosophical Inclusive Design: Intellectual Disability and the Limits of Individual Autonomy in Moral and Political Theory. Hypatia 30, 1 (2014), 132–148. https://doi.org/10.1111/hypa.12119Google ScholarCross Ref
- Melissa Dawe. 2006. Desperately Seeking Simplicity: How Young Adults with Cognitive Disabilities and Their Families Adopt Assistive Technologies. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Montréal, Québec, Canada) (CHI ’06). ACM, New York, NY, USA, 1143–1152. https://doi.org/10.1145/1124772.1124943Google ScholarDigital Library
- Melissa Dawe. 2007. Understanding Mobile Phone Requirements for Young Adults with Cognitive Disabilities. In Proceedings of the 9th International ACM SIGACCESS Conference on Computers and Accessibility (Tempe, Arizona, USA) (Assets ’07). ACM, New York, NY, USA, 179–186. https://doi.org/10.1145/1296843.1296874Google ScholarDigital Library
- George Demiris, Brian K. Hensel, Marjorie Skubic, and Marilyn Rantz. 2008. Senior residents’ perceived need of and preferences for ”smart home” sensor technologies. International Journal of Technology Assessment in Health Care 24, 1(2008), 120–124. https://doi.org/10.1017/S0266462307080154Google ScholarCross Ref
- George Demiris, Marilyn J. Rantz, Myra A. Aud, Karen D. Marek, Harry W. Tyrer, Marjorie Skubic, and Ali A. Hussam. 2004. Older adults’ attitudes towards and perceptions of ’smart home’ technologies: a pilot study. Medical Informatics and the Internet in Medicine 29, 2 (2004), 87–94. https://doi.org/10.1080/14639230410001684387Google ScholarCross Ref
- Sebastian Deterding, Dan Dixon, Rilla Khaled, and Lennart Nacke. 2011. From Game Design Elements to Gamefulness: Defining ”Gamification”. In Proceedings of the 15th International Academic MindTrek Conference: Envisioning Future Media Environments (Tampere, Finland) (MindTrek ’11). ACM, New York, NY, USA, 9–15. https://doi.org/10.1145/2181037.2181040Google ScholarDigital Library
- Emma Dixon and Amanda Lazar. 2020. Approach Matters: Linking Practitioner Approaches to Technology Design for People with Dementia. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI ’20). Association for Computing Machinery, New York, NY, USA, 1–15. https://doi.org/10.1145/3313831.3376432Google ScholarDigital Library
- Nir Eyal. 2012. Using informed consent to save trust. Journal of Medical Ethics(2012). https://doi.org/10.1136/medethics-2012-100490Google Scholar
- Gerhard Fischer and Thomas Herrmann. 2011. Socio-technical systems: a meta-design perspective. International Journal of Sociotechnology and Knowledge Development (IJSKD) 3, 1(2011), 1–33.Google ScholarCross Ref
- Harry G. Frankfurt. 1988. Freedom of the Will and the Concept of a Person. Humana Press, Totowa, NJ, 127–144. https://doi.org/10.1007/978-1-4612-3950-5_6Google Scholar
- Christopher Frauenberger, Julia Makhaeva, and Katharina Spiel. 2016. Designing Smart Objects with Autistic Children: Four Design Exposès. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (San Jose, California, USA) (CHI ’16). ACM, New York, NY, USA, 130–139. https://doi.org/10.1145/2858036.2858050Google ScholarDigital Library
- Markus Funk, Andreas Bächler, Liane Bächler, Oliver Korn, Christoph Krieger, Thomas Heidenreich, and Albrecht Schmidt. 2015. Comparing Projected In-Situ Feedback at the Manual Assembly Workplace with Impaired Workers. In Proceedings of the 8th International Conference on PErvasive Technologies Related to Assistive Environments (Corfu, Greece). ACM, New York, NY, USA. https://doi.org/10.1145/2769493.2769496Google ScholarDigital Library
- Markus Funk, Andreas Bächler, Liane Bächler, Thomas Kosch, Thomas Heidenreich, and Albrecht Schmidt. 2017. Working with Augmented Reality? A Long-Term Analysis of In-Situ Instructions at the Assembly Workplace. In Proceedings of the 10th ACM International Conference on PErvasive Technologies Related to Assistive Environments(Rhodos, Greece). ACM, New York, NY, USA. https://doi.org/10.1145/3056540.3056548Google ScholarDigital Library
- Markus Funk, Thomas Kosch, and Albrecht Schmidt. 2016. Interactive Worker Assistance: Comparing the Effects of in-Situ Projection, Head-Mounted Displays, Tablet, and Paper Instructions. In Proceedings of the 2016 ACM International Joint Conference on Pervasive and Ubiquitous Computing(Heidelberg, Germany) (UbiComp ’16). Association for Computing Machinery, New York, NY, USA, 934–939. https://doi.org/10.1145/2971648.2971706Google ScholarDigital Library
- Markus Funk, Sven Mayer, and Albrecht Schmidt. 2015. Using In-Situ Projection to Support Cognitively Impaired Workers at the Workplace. In Proceedings of the 17th international ACM SIGACCESS conference on Computers & accessibility. ACM. https://doi.org/10.1145/2700648.2809853Google ScholarDigital Library
- Markus Funk and Albrecht Schmidt. 2015. Cognitive Assistance in the Workplace. IEEE Pervasive Computing 14, 3 (July 2015), 53–55. https://doi.org/10.1109/MPRV.2015.53Google ScholarDigital Library
- Nitesh Goyal and Susan R. Fussell. 2016. Effects of Sensemaking Translucence on Distributed Collaborative Analysis. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing(San Francisco, California, USA) (CSCW ’16). ACM, New York, NY, USA, 288–302. https://doi.org/10.1145/2818048.2820071Google ScholarDigital Library
- Peter Gregor, Alan F. Newell, and Mary Zajicek. 2002. Designing for Dynamic Diversity: Interfaces for Older People. In Proceedings of the Fifth International ACM Conference on Assistive Technologies (Edinburgh, Scotland) (Assets ’02). ACM, New York, NY, USA, 151–156. https://doi.org/10.1145/638249.638277Google ScholarDigital Library
- Ian Hacking. 1990. The taming of chance. Vol. 17. Cambridge University Press.Google Scholar
- Li Jiang, Da-You Liu, and Bo Yang. 2004. Smart home research. In Proceedings of 2004 International Conference on Machine Learning and Cybernetics (IEEE Cat. No.04EX826), Vol. 2. 659–663 vol.2. https://doi.org/10.1109/ICMLC.2004.1382266Google ScholarCross Ref
- Elizabeth Kaziunas, Mark S. Ackerman, Silvia Lindtner, and Joyce M. Lee. 2017. Caring through Data: Attending to the Social and Emotional Experiences of Health Datafication. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (Portland, Oregon, USA) (CSCW ’17). Association for Computing Machinery, New York, NY, USA, 2260–2272. https://doi.org/10.1145/2998181.2998303Google ScholarDigital Library
- Oliver Korn. 2012. Industrial Playgrounds: How Gamification Helps to Enrich Work for Elderly or Impaired Persons in Production. In Proceedings of the 4th ACM SIGCHI Symposium on Engineering Interactive Computing Systems (Copenhagen, Denmark) (EICS ’12). ACM, New York, NY, USA, 313–316. https://doi.org/10.1145/2305484.2305539Google ScholarDigital Library
- Oliver Korn, Markus Funk, and Albrecht Schmidt. 2015. Towards a Gamification of Industrial Production: A Comparative Study in Sheltered Work Environments. In Proceedings of the 7th ACM SIGCHI Symposium on Engineering Interactive Computing Systems (Duisburg, Germany) (EICS ’15). ACM, New York, NY, USA, 84–93. https://doi.org/10.1145/2774225.2774834Google ScholarDigital Library
- Oliver Korn, Albrecht Schmidt, and Thomas Hörz. 2013. The Potentials of In-situ-projection for Augmented Workplaces in Production: A Study with Impaired Persons. In CHI ’13 Extended Abstracts on Human Factors in Computing Systems (Paris, France) (CHI EA ’13). ACM, New York, NY, USA, 979–984. https://doi.org/10.1145/2468356.2468531Google ScholarDigital Library
- Thomas Kosch, Romina Kettner, Markus Funk, and Albrecht Schmidt. 2016. Comparing Tactile, Auditory, and Visual Assembly Error-Feedback for Workers with Cognitive Impairments. In Proceedings of the 18th international ACM SIGACCESS conference on Computers & accessibility. ACM. https://doi.org/10.1145/2982142.2982157Google ScholarDigital Library
- Thomas Kosch, Robin Welsch, Lewis Chuang, and Albrecht Schmidt. 2022. The Placebo Effect of Artificial Intelligence in Human-Computer Interaction. ACM Transactions on Computer-Human Interaction (mar 2022). https://doi.org/10.1145/3529225Google ScholarDigital Library
- Thomas Kosch, Kevin Wennrich, Daniel Topp, Marcel Muntzinger, and Albrecht Schmidt. 2019. The Digital Cooking Coach: Using Visual and Auditory in-Situ Instructions to Assist Cognitively Impaired during Cooking. In Proceedings of the 12th ACM International Conference on PErvasive Technologies Related to Assistive Environments(Rhodes, Greece) (PETRA ’19). Association for Computing Machinery, New York, NY, USA, 156–163. https://doi.org/10.1145/3316782.3321524Google ScholarDigital Library
- Thomas Kosch, Paweł W. Woźniak, Erin Brady, and Albrecht Schmidt. 2018. Smart Kitchens for People with Cognitive Impairments: A Qualitative Study of Design Requirements. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (Montreal QC, Canada) (CHI ’18). ACM, New York, NY, USA, Article 271, 12 pages. https://doi.org/10.1145/3173574.3173845Google ScholarDigital Library
- Anna Lawson. 2006. The United Nations Convention on the Rights of Persons with Disabilities: New era or false dawn. Syracuse J. Int’l L. & Com. 34 (2006), 563.Google Scholar
- Matthew L. Lee and Anind K. Dey. 2007. Providing Good Memory Cues for People with Episodic Memory Impairment. In Proceedings of the 9th International ACM SIGACCESS Conference on Computers and Accessibility(Tempe, Arizona, USA) (Assets ’07). ACM, New York, NY, USA, 131–138. https://doi.org/10.1145/1296843.1296867Google ScholarDigital Library
- Kiel Long, Lyndsey L. Bakewell, Roisin C. McNaney, Konstantina Vasileiou, Mark Atkinson, Manuela Barreto, Julie Barnett, Michael Wilson, Shaun Lawson, and John Vines. 2017. Connecting Those That Care: Designing for Transitioning, Talking, Belonging and Escaping. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (Denver, Colorado, USA) (CHI ’17). Association for Computing Machinery, New York, NY, USA, 1339–1351. https://doi.org/10.1145/3025453.3025715Google ScholarDigital Library
- Edmund Frank Lopresti, Alex Mihailidis, and Ned Kirsch. 2004. Assistive technology for cognitive rehabilitation: State of the art. Neuropsychological Rehabilitation 14, 1-2 (2004), 5–39. https://doi.org/10.1080/09602010343000101Google Scholar
- Jane McKeown, Amanda Clarke, Christine Ingleton, and Julie Repper. 2010. Actively involving people with dementia in qualitative research. Journal of Clinical Nursing 19, 13‐14 (2010), 1935–1943. https://doi.org/10.1111/j.1365-2702.2009.03136.x arXiv:https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1365-2702.2009.03136.xGoogle Scholar
- O. Meulenbroek, M. Vernooij-Dassen, R.P.C. Kessels, M.J.L. Graff, M.J.C. Sjögren, B.W.M. Schalk, M.E. Hoogsteen-Ossewaarde, J.A.H.R. Claassen, R.J.F. Melis, and M.G.M. Olde Rikkert. 2010. Informed consent in dementia research. Legislation, theoretical concepts and how to assess capacity to consent. European Geriatric Medicine 1, 1 (2010), 58–63. https://doi.org/10.1016/j.eurger.2010.01.009Google ScholarCross Ref
- Alex Mihailidis, Jennifer N Boger, Tammy Craig, and Jesse Hoey. 2008. The COACH prompting system to assist older adults with dementia through handwashing: An efficacy study. BMC geriatrics 8, 1 (2008), 28.Google ScholarCross Ref
- Franklin Miller and Alan Wertheimer. 2010. The ethics of consent: theory and practice. Oxford University Press.Google Scholar
- Cosmin Munteanu, Amy Bruckman, Michael Muller, Christopher Frauenberger, Casey Fiesler, Robert E. Kraut, Katie Shilton, and Jenny Waycott. 2019. SIGCHI Research Ethics Town Hall. In Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI EA ’19). ACM, New York, NY, USA, Article panel05, 6 pages. https://doi.org/10.1145/3290607.3311742Google ScholarDigital Library
- Cosmin Munteanu, Heather Molyneaux, Wendy Moncur, Mario Romero, Susan O’Donnell, and John Vines. 2015. Situational Ethics: Re-thinking Approaches to Formal Ethics Requirements for Human-Computer Interaction. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (Seoul, Republic of Korea) (CHI ’15). ACM, New York, NY, USA, 105–114. https://doi.org/10.1145/2702123.2702481Google ScholarDigital Library
- Helen Nissenbaum. 2009. Privacy in context: Technology, policy, and the integrity of social life. Stanford University Press.Google ScholarDigital Library
- World Health Organization. 2011. World Report on Disability. World Health Organization.Google Scholar
- Jennifer Parks. 2010. Lifting the Burden of Women’s Care Work: Should Robots Replace the ”Human Touch”?Hypatia 25, 1 (2010), 100–120. https://doi.org/10.1111/j.1527-2001.2009.01086.xGoogle Scholar
- Robert Perneczky, Corina Pohl, Christian Sorg, Julia Hartmann, Katja Komossa, Panagiotis Alexopoulos, Stefan Wagenpfeil, and Alexander Kurz. 2006. Complex activities of daily living in mild cognitive impairment: conceptual and diagnostic issues. Age and ageing 35, 3 (2006), 240–245. https://doi.org/10.1093/ageing/afj054Google Scholar
- Martha E. Pollack. 2005. Intelligent technology for an aging population: The use of AI to assist elders with cognitive impairment. AI magazine 26, 2 (2005), 9. https://doi.org/10.1609/aimag.v26i2.1810Google ScholarDigital Library
- James D. Reschovsky and Sandra J. Newman. 1990. Adaptations for Independent Living by Older Frail Households. The Gerontologist 30, 4 (1990), 543–552. https://doi.org/10.1093/geront/30.4.543Google ScholarCross Ref
- Beate Rossler. 2018. The value of privacy. John Wiley & Sons.Google Scholar
- Hanna Schneider, Malin Eiband, Daniel Ullrich, and Andreas Butz. 2018. Empowerment in HCI - A Survey and Framework. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (Montreal QC, Canada) (CHI ’18). ACM, New York, NY, USA, Article 244, 14 pages. https://doi.org/10.1145/3173574.3173818Google ScholarDigital Library
- Ashley Shew. 2020. Ableism, Technoableism, and Future AI. IEEE Technology and Society Magazine 39, 1 (2020), 40–85. https://doi.org/10.1109/MTS.2020.2967492Google ScholarCross Ref
- Susan Slaughter, Dixie Cole, Eileen Jennings, and Marlene A Reimer. 2007. Consent and Assent to Participate in Research from People with Dementia. Nursing Ethics 14, 1 (2007), 27–40. https://doi.org/10.1177/0969733007071355Google ScholarCross Ref
- Katta Spiel, Emeline Brulé, Christopher Frauenberger, Gilles Bailly, and Geraldine Fitzpatrick. 2018. Micro-Ethics for Participatory Design with Marginalised Children. In Participatory Design Conference, Vol. 1. Hasselt & Genk, Belgium. https://doi.org/10.1145/3210586.3210603Google ScholarDigital Library
- Katta Spiel, Kathrin Gerling, Cynthia L. Bennett, Emeline Brulé, Rua M. Williams, Jennifer Rode, and Jennifer Mankoff. 2020. Nothing About Us Without Us: Investigating the Role of Critical Disability Studies in HCI. In Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems(Honolulu, HI, USA) (CHI EA ’20). Association for Computing Machinery, New York, NY, USA, 1–8. https://doi.org/10.1145/3334480.3375150Google ScholarDigital Library
- Emmanuel Stip and Vincent Rialle. 2005. Environmental Cognitive Remediation in Schizophrenia: Ethical Implications of ”Smart Home” Technology. The Canadian Journal of Psychiatry 50, 5 (2005), 281–291. https://doi.org/10.1177/070674370505000509Google ScholarCross Ref
- Shari Trewin. 2018. AI Fairness for People with Disabilities: Point of View. arxiv:1811.10670 [cs.AI]Google Scholar
- Shari Trewin, Sara Basson, Michael Muller, Stacy Branham, Jutta Treviranus, Daniel Gruen, Daniel Hebert, Natalia Lyckowski, and Erich Manser. 2019. Considerations for AI Fairness for People with Disabilities. AI Matters 5, 3 (Dec. 2019), 40–63. https://doi.org/10.1145/3362077.3362086Google ScholarDigital Library
- Angela K. Troyer and Kelly J. Murphy. 2007. Memory for intentions in amnestic mild cognitive impairment: Time- and event-based prospective memory. Journal of the International Neuropsychological Society 13, 2(2007), 365–369. https://doi.org/10.1017/S1355617707070452Google ScholarCross Ref
- Jeroen Van Den Hoven. 2008. Information technology, privacy, and the protection of personal data. Information technology and moral philosophy 301 (2008).Google ScholarCross Ref
- Alexandra Voit, Thomas Kosch, Henrike Weingartner, and Paweł W. Woźniak. 2021. The Attention Kitchen: Comparing Modalities for Smart Home Notifications in a Cooking Scenario. In 20th International Conference on Mobile and Ubiquitous Multimedia (Leuven, Belgium) (MUM 2021). Association for Computing Machinery, New York, NY, USA, 90–97. https://doi.org/10.1145/3490632.3490660Google ScholarDigital Library
- Jenny Waycott, Hilary Davis, Anja Thieme, Stacy Branham, John Vines, and Cosmin Munteanu. 2015. Ethical Encounters in HCI: Research in Sensitive Settings. In Proceedings of the 33rd Annual ACM Conference Extended Abstracts on Human Factors in Computing Systems (Seoul, Republic of Korea) (CHI EA ’15). ACM, New York, NY, USA, 2369–2372. https://doi.org/10.1145/2702613.2702655Google ScholarDigital Library
- David Wendler. 2017. The Ethics of Clinical Research. In The Stanford Encyclopedia of Philosophy(winter 2017 ed.), Edward N. Zalta (Ed.). Metaphysics Research Lab, Stanford University.Google Scholar
- Wiktoria Wilkowska and Martina Ziefle. 2012. Privacy and data security in E-health: Requirements from the user’s perspective. Health Informatics Journal 18, 3 (2012), 191–201. https://doi.org/10.1177/1460458212442933Google ScholarCross Ref
- Anon Ymous, Katta Spiel, Os Keyes, Rua M. Williams, Judith Good, Eva Hornecker, and Cynthia L. Bennett. 2020. ”I Am Just Terrified of My Future” — Epistemic Violence in Disability Related Technology Research. In Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI EA ’20). Association for Computing Machinery, New York, NY, USA, 1–16. https://doi.org/10.1145/3334480.3381828Google ScholarDigital Library
- Salifu Yusif, Jeffrey Soar, and Abdul Hafeez-Baig. 2016. Older people, assistive technologies, and the barriers to adoption: A systematic review. International Journal of Medical Informatics 94 (2016), 112 – 116. https://doi.org/10.1016/j.ijmedinf.2016.07.004Google ScholarCross Ref
- Sandra A. Zwijsen, Alistair R. Niemeijer, and Cees M.P.M. Hertogh. 2011. Ethics of using assistive technology in the care for community-dwelling elderly people: An overview of the literature. Aging & Mental Health 15, 4 (2011), 419–427. https://doi.org/10.1080/13607863.2010.543662Google ScholarCross Ref
Index Terms
- Engagement, not Dependence: Ethically Designing Assistive Systems for Users with Cognitive Impairments
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