Accepted for/Published in: JMIR Pediatrics and Parenting
Date Submitted: Apr 27, 2020
Date Accepted: Oct 3, 2020
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Do I find what I’m looking for? An analysis and evaluation of websites used by caregivers of a child living with a disability.
ABSTRACT
Background:
There is a wealth of information on the web for caregivers of typical children who are looking for additional information or activities for them. However, the challenge begins when caregivers need information about children with special care, especially for non-English speaking caregivers.
Objective:
This study aims to describe the type of information, the actionability, and the opportunity for networking available on the internet for caregivers of a child living with a disability.
Methods:
We carried out a search and evaluation of the current websites destined to caregivers of children living with a disability that contain information, tips, and tools for everyday life. We extracted structural, textual, and visual characteristics of relevant websites to evaluate them using the PEMAT tool.
Results:
Of the 42 websites that we analysed, less than half relied on a professional of scientific review committee. Advice, information, and references were presented in 76% of the sites but only 17% offered opportunities for users to network. Most websites obtained high scores on the PEMAT (over 90%) because they organised their information well and proposed actions that were easy to understand and to apply.
Conclusions:
Of note, it is quite easy to find information about some disabilities (e.g. autism spectrum disorder and learning disabilities), while it remains difficult to find information about others (e.g. developmental language disorder, behavioral disorder). Finally, while the Internet could potentially provide a place for caregivers of a child with a disability to network, we did not find such examples in the current study. Clinical Trial: NA
Citation
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